Prof. Dr. Gisela Michel
Professorin für Gesundheits- und Sozialverhalten
Co-Director PhD Programm in Health Sciences
T +41 41 229 59 55 • Alpenquai 4, Room 9 • gisela.michel@unilu.ch
CV
Gisela Michel hat einen Doktortitel in Psychologie mit Schwerpunkt Klinische und Gesundheitspsychologie (Universität Freiburg, Schweiz). 2003 verbrachte sie ein Jahr als Mobilitäts-Doktorandin an der New York University, USA. Nach ihrem Doktorat arbeitete sie im Schweizer Kinderkrebsregister mit einem Fokus auf epidemiologischer Forschung im Bereich Überleben, psychosoziale Spätfolgen und Nachsorge. Von 2007 bis 2009 verbrachte sie zwei Jahre als Gastwissenschaftlerin an der University of Sheffield, England. Zwischen 2009 und 2013 war sie als Ambizione-Stipendiatin des Schweizerischen Nationalfonds am Institut für Sozial- und Präventivmedizin der Universität Bern tätig. Im Jahr 2013 wurde sie ausserordentliche Professorin an der Universität Luzern. Seit 2021 ist sie ordentliche Professorin für Gesundheits- und Sozialverhalten.
Research
Meine Forschung konzentriert sich auf psychosoziale Folgen und Versorgungsforschung bei Patienten mit chronischen Erkrankungen. Ein zentrales Thema meiner Forschung ist Krebs im Kindesalter (psychosoziale Spätfolgen nach Krebs im Kindesalter, langfristige Nachsorge für Überlebende von Krebs im Kindesalter, psychosoziale Folgen bei Familienmitgliedern von Krebspatienten und -überlebenden).
Projects
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e-QuoL: e-health tools to promote Equality in Quality of Life for childhood to young adulthood cancer patients, survivors and their families
2024–2027 -
LENTIL - quaLity critEria iN pediaTrIc oncoLogy
2022–2025 -
GROKids: Grandparents' involvement and psychosocial outcomes when a grandchild is diagnosed with cancer: acute and long-term consequences
Wenn ein Kind an Krebs erkrankt, ist die ganze Familie betroffen: Eltern, Geschwister aber auch die Grosseltern. Diese unterstützen die Familie in vielen Bereichen und helfen der Familie durch die schwierige Zeit der Erkrankung. 2019–2024 -
Bereavement Study: Needs, desires and psychosocial outcomes in bereaved parents who lost their child to cancer: palliative and end-of-life care in paediatric oncology
Wie gehen Eltern mit dem Tod ihrer krebskranken Kinder um und auf welche Hilfe sind sie angewiesen? 2019–2024 -
PanCareFollowUp: Novel, patient-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for survivors and caregivers
2019–2023 -
Academic performance of children with Sickle Cell Disease in Benin
2022– -
Musculoskeletal Health Conditions, Cancer-related Fatigue, and their Associations with Physical Functioning and Physiotherapy Utilization in Survivors of Childhood Cancer.
Muskuloskelettale Gesundheitsprobleme, tumorbedingte Fatigue und deren Zusammenhang mit Funktionsfähigkeit und Physiotherapie-Nutzung bei ehemaligen Kinderkrebspatient:innen. 2021–
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Improving access to screening for hearing loss after childhood cancer – a novel community-based approach
2020–2023 -
Psychosexual development, sexual functioning and sexual satisfaction in long term childhood cancer survivors: DCCSS-LATER 2 Sexuality Substudy
2022–2022 -
Corona-Immunitas
In der Corona Immunitas Studie geht es darum herauszufinden, wie viele Personen in etwa sich im Kanton Luzern mit dem SARS-CoV-2 Virus angesteckt haben. 2020–2022 -
Psychological late effects in long-term childhood cancer survivors – Development of guidelines for follow-up care
Psychologische Spätfolgen bei ehemaligen Kinderkrebspatienten – Entwicklung von Behandlungsrichtlinien für die Nachsorge, 2016–2021 -
Needs for Psychosocial Care after Childhood Cancer - A mixed methods study
Bedürfnisse für psychosoziale Nachsorge nach Krebs im Kindesalter, 2017–2021 -
EMotion: Improving Follow-up Care of Childhood Cancer: Implementation of Screening for Psychological Distress
Verbesserung der Nachsorge nach Krebs im Kindesalter: Ein Kurzfragebogen zur Erhebung psychischer Problemen, 2017–2021 -
CoWell: Psychological, quality of life and socio-economic outcomes during the COVID-19 pandemic
2020–2020 -
Resilience and vulnerability after the onset of a chronic health condition: A longitudinal study using Swiss Household Panel data
2016–2019 -
Parents of long-term childhood cancer survivors
Wie geht es Eltern nach Krebs im Kindesalter? 2014–2018 -
Children’s At Home: A social media website for peer support during transition for parents of adolescent cancer survivors
2016–2017 -
Mortality and second primary cancers after cancer in childhood and adolescence
Spätmortalität und Zweittumoren nach Krebs im Kindesalter, 2012–2015 -
Effectiveness of transition to adult care after childhood cancer
Ist der Wechsel von der Pädiatrischen zur Erwachsenen-Nachbetreuung bei ehemaligen Kinderkrebspatienten erfolgreich? 2011–2014 -
CCFU: Follow-up care after childhood and young adult cancer
2009–2014 -
Late mortality, second primary cancers and cardiovascular late effects in childhood cancer survivors: Swiss participation in the EU FP7 project “PanCareSurFup”
Spätmortalität, Zweittumoren und Kardiovaskuläre Erkrankungen nach Krebs im Kindesalter, 2011–2014 -
Follow-up care in childhood and young adult cancer survivors: Perspectives of survivors, oncologists and general practitioners
Nachsorge nach Krebs im Kindes und jungen Erwachsenenalter in England, 2007–2010 -
Wahrnehmung körperlicher Symptome im Alltag: Einfluss von Emotionen, Attributionen und Coping
Wahrnehmung körperlicher Symptome im Alltag: Einfluss von Emotionen, Attributionen und Coping, 2003–2003
Publications
- Baenziger, J., Roser, K., Mader, L., Ilic, A., Sansom-Daly, U. M., von Bueren, A. O., … Michel, G. (2024). Post-traumatic growth in parents of long-term childhood cancer survivors compared to the general population: A report from the Swiss childhood cancer survivor study—Parents. Psycho-Oncology, 33 (1), 6246 ff. https://doi.org/10.5281/zenodo.10362382
- Hau, E.-M., Sláma, T., Essig, S., Michel, G., Wengenroth, L., Bergstraesser, E., … Kuehni, C. E. (2024). Validation of self-reported cardiovascular problems in childhood cancer survivors by contacting general practitioners: feasibility and results. BMC Primary Care, 25 (1), 81 ff. https://doi.org/10.5281/zenodo.11031291
- Holmer, P., Muehlebach, N., Ilic, A., Priboi, C., Roser, K., Raguindin, P. F., … Michel, G. (2024). Exploring grandparents’ psychosocial responses to childhood cancer: A qualitative study. Psycho-Oncology, 2. https://doi.org/10.1002/pon.6304
- Christen, S., Roser, K., Mader, L., Otth, M., Scheinemann, K., Sommer, G., … Michel, G. (2024). Incidence and prevalence of musculoskeletal health conditions in survivors of childhood and adolescent cancers: A report from the Swiss childhood cancer survivor study. Cancer Medicine. https://doi.org/http://dx.doi.org/10.1002/cam4.7204
- Probst-Hensch, N., Imboden, M., Jeong, A., Keidel, D., Vermes, T., Witzig, M., … Lovison, G. F. (2024). Long-term trajectories of densely reported depressive symptoms during an extended period of the COVID-19 pandemic in Switzerland: Social worries matter. Comprehensive Psychiatry, 130, 152457 ff. https://doi.org/10.5281/zenodo.11030778
- Dalkner, N., Fleischmann, E., Borgmann-Staudt, A., Fürschuß, C., Klco-Brosius, S., Kepakova, K., … Balcerek, M. (2024). Parenthood for childhood cancer survivors: Unfounded fear of cancer development in offspring and related health behaviors. Frontiers in Psychology, 14. https://doi.org/10.5281/zenodo.10549095
- Priboi, C., Ilic, A., Holmer, P., Raguindin, P. F., Roser, K., Tinner, E. M., … Michel, G. (2024). Psychological distress in grandparents of grandchildren who survived childhood cancer - Results from the GROkids project. European Journal of cancer paediatric oncology, 3, 100162 ff. https://doi.org/https://doi.org/10.1016/j.ejcped.2024.100162
- Heymer, E. J., Hawkins, M. M., Winter, D. L., Teepen, J. C., Sunguc, C., Ronckers, C. M., … Reulen, R. C. (2024). Risk of subsequent gliomas and meningiomas among 69,460 5-year survivors of childhood and adolescent cancer in Europe: the PanCareSurFup study. British Journal of Cancer. https://doi.org/10.5281/zenodo.10560216
- Bouwman, E., Penson, A., de Valk, M., van den Oever, S. R., van der Pal, H. J. H., van Dulmen-den Broeder, E., … Loonen, J. J. (2024). Unhealthy lifestyle behaviors, overweight, and obesity among childhood cancer survivors in the Netherlands: A DCCSS LATER study. Cancer. https://doi.org/https://doi.org/10.1002/cncr.35338
- Roser, K., Baenziger, J., Ilic, A., Mitter, V. R., Mader, L., Dyntar, D., … Sommer, G. (2023). Health-related quality of life before and during the COVID-19 pandemic in Switzerland: a cross-sectional study. Quality of Life Research, 32 (9), 2695–2706. https://doi.org/10.5281/zenodo.10013581
- Luedi, C., Frank, I., Krähenbühl, C., Michel, G., & Harju, E. (2023). Psychological distress during the COVID-19 pandemic: changes over time and the effect of socioeconomic status. Swiss Medical Weekly; Swiss Med Wkly, 153 (9), 40111 ff. https://doi.org/10.5281/zenodo.8359234
- Tancredi, S., Ulytė, A., Wagner, C., Keidel, D., Witzig, M., Imboden, M., … Zuppinger, C. (2023). Changes in socioeconomic resources and mental health after the second COVID-19 wave (2020–2021): a longitudinal study in Switzerland. International Journal for Equity in Health, 22 (51), 1–15. https://doi.org/10.5281/zenodo.7766289
- Ikediashi, B. G., Ehrmann, C., Gomez, S., & Michel, G. (2023). Disease knowledge and health literacy in parents of children with sickle cell disease. eJHaem, 4 (4), 956–962. https://doi.org/10.5281/zenodo.8282862
- Hou, S. H. J., Forbes, C., Cho, S., Tran, A., Forster, V. J., Wakefield, C. E., … Schulte, F. M. S. (2023). Mental health and health behaviors of parents of survivors of childhood cancer in the early COVID-19 pandemic: Exploring the role of intolerance of uncertainty. Journal of Psychosocial Oncology Research and Practice, 5 (3), 107 ff. Abgerufen von https://journals.lww.com/jporp/fulltext/2023/07000/mental_health_and_health_behaviors_of_parents_of.5.aspx
- Dudley, I. M., Sunguc, C., Heymer, E. J., Winter, D. L., Teepen, J. C., Belle, F. N., … Reulen, R. C. (2023). Risk of subsequent primary lymphoma in a cohort of 69,460 five-year survivors of childhood and adolescent cancer in Europe: The PanCareSurFup study. Cancer, 129 (3), 426–440. https://doi.org/10.5281/zenodo.7410346
- Vokinger, A. K., Pedraza, E. C., De Clercq, E., Tinner, E. M., Bergsträsser, E., & Michel, G. (2023). Leben mit Verlust: Trauerbegleitung nach dem Tod eines Kindes an Krebs - Angebotene Trauerbegleitung, Coping-Strategien und Bedürfnisse von Eltern. palliative.ch, (2), 12–18. https://doi.org/10.5281/zenodo.10513907
- Harju, E., Roser, K., Eisenreich, B., Scheinemann, K., & Michel, G. (2023). Psychological distress in survivors of childhood cancer and their parents before and after a follow-up appointment: the need for screening and validation of the emotion thermometer. Journal of Psychosocial Oncology Research and Practice, 5 (2). https://doi.org/10.5281/zenodo.7795489
- Altherr, A., Bolliger, C., Kaufmann, M., Dyntar, D., Scheinemann, K., Michel, G., … Roser, K. (2023). Education, Employment, and Financial Outcomes in Adolescent and Young Adult Cancer Survivors - A Systematic Review. Current Oncology, 30 (10), 8720–8763. https://doi.org/10.5281/zenodo.10119158
- Sunguc, C., Hawkins, M. M., Winter, D. L., Dudley, I. M., Heymer, E. J., Teepen, J. C., … Reulen, R. C. (2023). Risk of subsequent primary oral cancer in a cohort of 69,460 5-year survivors of childhood and adolescent cancer in Europe: the PanCareSurFup study. British Journal of Cancer, 128 (1), 80–90. https://doi.org/10.5281/zenodo.7276789
- Michel, G., Raguindin, P. F., Priboi, C., Ilic, A., Holmer, P., Scheinemann, K., … Hengartner, H. (2023). Acute and long-term psychosocial consequences in grandparents when a grandchild is diagnosed with cancer – the GROKids Project: a population-based mixed-methods study protocol. BMC Psychology, 1, 280 ff. https://doi.org/10.1186/s40359-023-01309-w
- Harju, E., Speierer, A., Jungo, K. T., Levati, S., Baggio, S., Tancredi, S., … Chocano-Bedoya, P. (2023). Changes in Healthcare Utilization During the COVID-19 Pandemic and Potential Causes—A Cohort Study From Switzerland. International Journal of Public Health, 68, 1606010 ff. https://doi.org/10.5281/zenodo.8282901
- Pedraza, E. C., Michel, G., Altherr, A., Hendriks, M. J., & De Clercq, E. (2023). Coping strategies in families who lost a child to cancer: A Scoping review. European Journal of Cancer: Paediatric Oncology, 1, 100011 ff. https://doi.org/10.5281/zenodo.8163225
- Sabatini, S., Kaufmann, M., Fadda, M., Tancredi, S., Noor, N., Van Der Linden, B. W. A., … von Wyl, V. (2023). Factors Associated With COVID-19 Non-Vaccination in Switzerland: A Nationwide Study. International Journal of Public Health, 68, 1605852 ff. https://doi.org/10.5281/zenodo.8099399
- Daniore, P., Moser, A., Höglinger, M., Probst Hensch, N., Imboden, M., Vermes, T., … von Wyl, V. (2023). Interplay of Digital Proximity App Use and SARS-CoV-2 Vaccine Uptake in Switzerland: Analysis of Two Population-Based Cohort Studies. International Journal of Public Health, 68. Abgerufen von https://www.ssph-journal.org/articles/10.3389/ijph.2023.1605812
- Pedraza, E. C., Raguindin, P. F., Hendriks, M. J., Vokinger, A. K., De Clercq, E., Rüesch, K., … Michel, G. (2023). Palliative care services in paediatric oncology centres across Europe: A cross-sectional survey. EJC Paediatric Oncology, 2, 100125 ff. https://doi.org/10.5281/zenodo.10401670
- Bolliger, C., Holmer, P., Dehler, S., Roser, K., & Michel, G. (2023). Posttraumatic growth and illness perception in survivors of adolescent and young adult cancer. Discover Oncology, 14, 194 ff. https://doi.org/10.5281/zenodo.10401673
- Priboi, C., van Gorp, M., Maurice-Stam, H., Michel, G., Kremer, L. C. M., Tissing, W. J. E., … Grootenhuis, M. (2023). Psychosexual development, sexual functioning and sexual satisfaction in long-term childhood cancer survivors: DCCSS-LATER 2 sexuality substudy. Psycho-Oncology, 1–10. https://doi.org/10.5281/zenodo.8172183
- Debnar, C., Peter, C., Morselli, D., Michel, G., Bachmann, N., & Carrard, V. (2023). Reciprocal association between social support and psychological distress in chronic physical health conditions: A random intercept cross-lagged panel model. Applied Psychology: Health and Well-Being; Appl Psychol Health Well‐Being, 12495 ff. https://doi.org/10.5281/zenodo.10014761
- Reulen, R. C., Winter, D. L., Diallo, I., Veres, C., Llanas, D., Allodji, R. S., … Hawkins, M. M. (2023). Risk Factors for Primary Bone Cancer After Childhood Cancer: A PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies Nested Case-Control Study. Journal of Clinical Oncology. https://doi.org/10.1200/JCO.22.02045
- Holmer, P., Bolliger, C., Vokinger, A. K., Dyntar, D., & Michel, G. (2023). Screening for mental health problems in childhood cancer survivorship: a systematic review. Journal of Psychosocial Oncology Research and Practice, 3. Abgerufen von https://journals.lww.com/jporp/Fulltext/2023/07000/Screening_for_mental_health_problems_in_childhood.2.aspx
- Tancredi, S., Chiolero, A., Wagner, C., Haller, M. L., Chocano-Bedoya, P., Ortega, N., … Zuppinger, C. (2023). Seroprevalence trends of anti-SARS-CoV-2 antibodies and associated risk factors: a population-based study. Infection, 51, 1453–1465. https://doi.org/10.5281/zenodo.7728585
- Gantner, B., Priboi, C., Schilling, F. H., Michel, G., & Roser, K. (2023). Systematic review: Care provided by grandparents of children with a chronic disease or a disability. EJC Paediatric Oncology, 2, 100126 ff. https://doi.org/https://doi.org/10.5281/zenodo.10401599
- Tran, A., Hou, S. H. J., Forbes, C., Cho, S., Forster, V. J., Stokoe, M., … Schulte, F. S. M. (2023). The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents. Current Oncology, 30, 2441–2456. https://doi.org/10.5281/zenodo.7788540
- Ilic, A., Sievers, Y., Roser, K., Scheinemann, K., & Michel, G. (2023). The information needs of relatives of childhood cancer patients and survivors: A systematic review of qualitative evidence. Patient Education and Counseling, 114. https://doi.org/10.5281/zenodo.10013436
- Ilic, A., Haardoerfer, R., Michel, G., Escoffery, C., Mertens, A. C., & Marchak, J. G. (2023). Understanding caregivers’ decision to vaccinate childhood cancer survivors against COVID-19. Cancer Medicine, 1–10. https://doi.org/https://doi.org/10.1002/cam4.6675
- Christen, S., Roser, K., Harju, E., Gumy-Pause, F., Mader, L., Vetsch, J., … Michel, G. (2023). Worries and anxiety in parents of adult survivors of childhood cancer: A report from the Swiss Childhood Cancer Survivor Study-Parents. Pediatric Blood & Cancer; Pediatr Blood Cancer, 30246 ff. https://doi.org/10.5281/zenodo.7795055
- Gebauer, J., Skinner, R., Haupt, R., Kremer, L., van der Pal, H., Michel, G., … Langer, T. (2022). The chance of transition: strategies for multidisciplinary collaboration. Endocrine Connections, 11 (9). https://doi.org/10.5281/zenodo.7113739
- Borgmann-Staudt, A., Michael, S., Sommerhaeuser, G., Fernández-González, M.-J., Friedrich, L. A., Klco-Brosius, S., … Balcerek, M. (2022). The Use of Assisted Reproductive Technology by European Childhood Cancer Survivors. Current Oncology, 29 (8), 5749 ff. https://doi.org/10.5281/zenodo.7113703
- van den Oever, S. R., Pluijm, S. M. F., Skinner, R., Glaser, A., Mulder, R. L., Armenian, S., … Kremer, L. C. M. (2022). Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns. Journal of Cancer Survivorship, 16 (6), 1390–1400. https://doi.org/10.5281/zenodo.5898099
- Hersche, R., Roser, K., Weise, A., Michel, G., & Barbero, M. (2022). Fatigue self-management education in persons with disease-related fatigue: A comprehensive review of the effectiveness on fatigue and quality of life. Patient Education and Counceling, 105 (6), 1362–1378. https://doi.org/https://doi.org/10.1016/j.pec.2021.09.016
- Priboi, C., Gantner, B., Holmer, P., Neves da Silva, L., Tinner, E. M., Roser, K., & Michel, G. (2022). Psychological outcomes and support in grandparents whose grandchildren suffer from a severe physical illness: A systematic review. Heliyon, 8 (5), 9365 ff. https://doi.org/10.5281/zenodo.6594659
- Halldorsdottir, B., Michel, G., & Baenziger, J. (2022). Post-traumatic growth in family members of childhood cancer survivors—an updated systematic review. Journal of Psychosocial Oncology Research and Practice, 4 (4), 1–12. https://doi.org/10.5281/zenodo.7382805
- Marchak, J. G., Christen, S., Mulder, R. L., Baust, K., Blom, J. M. C., Brinkman, T. M., … Michel, G. (2022). Recommendations for the surveillance of mental health problems in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. The Lancet Oncology, 23 (4), 184–196. https://doi.org/10.5281/zenodo.6418138
- Otth, M., Michel, G., Gerber, N. U., Guerreiro Stücklin, A. S., von Bueren, A. O., & Scheinemann, K. (2022). Educational Attainment and Employment Outcome of Survivors of Pediatric CNS Tumors in Switzerland—A Report from the Swiss Childhood Cancer Survivor Study: Children. Children, 9 (3), 411–422. https://doi.org/10.5281/zenodo.6358115
- Speierer, A., Chocano-Bedoya, P. O., Anker, D., Schmid, A., Keidel, D., Vermes, T., … von Wyl, V. (2022). The Corona Immunitas Digital Follow-Up eCohort to Monitor Impacts of the SARS-CoV-2 Pandemic in Switzerland: Study Protocol and First Results. International Journal of Public Health, 67 (1604506), 1–10. https://doi.org/10.5281/zenodo.6323267
- Devine, K. A., Christen, S., Mulder, R. L., Brown, M. C., Ingerski, L. M., Mader, L., … Schulte, F. S. M. (2022). Recommendations for the surveillance of education and employment outcomes in survivors of childhood, adolescent, and young adult cancer: A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Cancer, 128 (13), 2405–2419. https://doi.org/10.5281/zenodo.6518036
- Hou, S., Tran, A., Cho, S., Forbes, C., Forster, V., Stokoe, M., … Schulte, F. (2022). The perceived impact of COVID-19 on the mental health status of adolescent and young adult survivors of childhood cancer and the development of a knowledge translation tool to support their information needs. Frontiers in Psychology, (13), 867151 ff. https://doi.org/10.3389/fpsyg.2022.867151
- Ilic, A., Roser, K., Sommer, G., Baenziger, J., Mitter, V. R., Mader, L., … Michel, G. (2022). COVID-19 Information-Seeking, Health Literacy, and Worry and Anxiety During the Early Stage of the Pandemic in Switzerland: A Cross-Sectional Study. International Journal of Public Health, 67, 1604717 ff. https://doi.org/10.5281/zenodo.7113369
- van Kalsbeek, R. J., Korevaar, J. C., Rijken, M., Haupt, R., Muraca, M., Kepák, T., … Kremer, L. C. M. (2022). Evaluating the feasibility, effectiveness and costs of implementing person-centred follow-up care for childhood cancer survivors in four European countries: the PanCareFollowUp Care prospective cohort study protocol. BMJ Open, 12, 63134 ff. https://doi.org/10.5281/zenodo.7383056
- Blankenberger, J., Kaufmann, M., Albanese, E., Amati, R., Anker, D., Camerini, A.-L., … Kahlert, C. R. (2022). Is living in a household with children associated with SARS-CoV-2 seropositivity in adults? Results from the Swiss national seroprevalence study Corona Immunitas. BMC Medicine, 20, 233 ff. https://doi.org/10.5281/zenodo.6759991
- van Kalsbeek, R. J., Mulder, R. L., Haupt, R., Muraca, M., Hjorth, L., Follin, C., … Kremer, L. C. M. (2022). The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer. European Journal of Cancer, 162, 34–44. https://doi.org/10.5281/zenodo.5833778
- Hendriks, M. J., Harju, E., Roser, K., Ienca, M., & Michel, G. (2021). The long shadow of childhood cancer: a qualitative study on insurance hardship among survivors of childhood cancer. BMC Health Services Research, 21 (503), 1–12. https://doi.org/10.5281/zenodo.4892785
- Hendriks, M. J., Harju, E., & Michel, G. (2021). The unmet needs of childhood cancer survivors in long-term follow-up care: A qualitative study. Psycho-Oncology, 30 (4), 485–492. https://doi.org/10.5281/zenodo.4722576
- Gilleland Marchak, J., Devine, K. A., Hudson, M. M., Jacobson, L. A., Michel, G., Peterson, S. R., … Sands, S. A. (2021). Systematic Review of Educational Supports of Pediatric Cancer Survivors: Current Approaches and Future Directions. Journal of Clinical Oncology, 39 (16), 1–40. https://doi.org/10.5281/zenodo.4892765
- Sommerhäuser, G., Borgmann-Staudt, A., Schilling, R., Frey, E., Hak, J., Janhubová, V., … Balcerek, M. (2021). Health of children born to childhood cancer survivors: Participant characteristics and methods of the Multicenter Offspring Study. Cancer Epidemiology, 75, 102052 ff. https://doi.org/10.5281/zenodo.5724669
- van Kalsbeek, R. J., van der Pal, H. J. H., Hjorth, L., Winther, J. F., Michel, G., Haupt, R., … Te Dorsthorst, J. (2021). The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers. European Journal of Cancer, 153. https://doi.org/10.5281/zenodo.5081795
- Debnar, C., Carrard, V., Morselli, D., Michel, G., Bachmann, N., & Peter, C. (2021). The longitudinal impact of a chronic physical health condition on subjective well-being. Health Psychology, 6, 357–367. https://doi.org/10.5281/zenodo.5215342
- Hendriks, M. J., Hartmann, N., Harju, E., Roser, K., & Michel, G. (2021). “I don’t take for granted that I am doing well today”: a mixed methods study on well-being, impact of cancer, and supportive needs in long-term childhood cancer survivors. Quality of Life Research, 1–15. https://doi.org/10.5281/zenodo.5749750
- Christen, S., Roser, K., Mulder, R. L., Ilic, A., Lie, H. C., Melblom, A. V., … Michel, G. (2020). Recommendations for the Surveillance of Cancer-Related Fatigue in Childhood, Adolescent and Young Adult Cancer Survivors: A Report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Journal of Cancer Survivorship, 14 (6), 923–938. https://doi.org/10.5281/zenodo.4282886
- Hendriks, M. J., Pedraza, E. C., Tinner, E. M., Bergstraesser, E., & Michel, G. (2020). Wenn ein Kind an Krebs stirbt ... Auswirkungen auf die Eltern und Bedürfnisse für die Palliativ- und Trauerbegleitung in der pädiatrischen Onkologie. Schweizer Zeitschrift für Onkologie, (4), 32–34. https://doi.org/10.5281/zenodo.4268368
- Baenziger, J., Roser, K., Mader, L., Harju, E., Ansari, M., Waespe, N., … Michel, G. (2020). Post-traumatic stress in parents of long-term childhood cancer survivors compared to parents of the Swiss general population. Journal of Psychosocial Oncology Research and Practice, 2 (3), 24 ff. https://doi.org/10.5281/zenodo.4134525
- West, E. A., Anker, D., Amati, R., Richard, A., Wisniak, A., Butty, A., … Zuppinger, C. (2020). Corona Immunitas: study protocol of a nationwide program of SARS-CoV-2 seroprevalence and seroepidemiologic studies in Switzerland. International Journal of Public Health. https://doi.org/10.1007/s00038-020-01494-0
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- Michel, G. (2012). Nachsorge nach Krebs im Kindesalter. Schweizer Krebsbulletin, (3), 212–213. Abgerufen von http://sakk.ch/fileadmin/customer/Open_section/About_SAKK/Publications/Krebsbulletin/Schweizer_Krebsbulletin_3-2012.pdf
- Rebholz, C. E., Kuehni, C. E., Strippoli, M. P. F., Rueegg, C. S., Michel, G., Hengartner, H., … von der Weid, N. X. (2012). Alcohol consumption and binge drinking in young adult childhood cancer survivors. Pediatric Blood and Cancer, 58 (2), 256–264. https://doi.org/10.1002/pbc.23289
- Rebholz, C. E., Spycher, B. D., Rueegg, C. S., Michel, G., Amman, R., von der Weid, N. X., & Kuehni, C. E. for the S. P. O. G. (SPOG). (2012). Clustering of health behaviours in adult survivors of childhood cancer and the general population. British Journal of Cancer, 107 (2), 234–242. https://doi.org/10.1038/bjc.2012.250
- Essig, S., von der Weid, N. X., Skinner, R., Kuehni, C. E., & Michel, G. (2012). Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey. PLoS ONE, 7 (12), 53201. https://doi.org/10.1371/journal.pone.0053201
- Rueegg, C. S., Michel, G., Wengenroth, L., von der Weid, N. X., Bergstraesser, E., & Kuehni, C. E. (2012). Physical performance limitations in adolescent and adult survivors of childhood cancer and their siblings. PLoS ONE, 7 (10), 47944. https://doi.org/10.1371/journal.pone.0047944
- Michel, G., Greenfield, D., Absolom, K., & Eiser, C. (2011). Satisfaction with follow-up consultations among younger adults treated for cancer: the role of quality of life and psychological variables. Psycho-Oncology, 20 (8), 813–822. https://doi.org/10.1002/pon.1783
- Michel, G. (2011). Nachsorge nach Krebs im Kindesalter – Ein neues Feld für die Pflege? Onkologiepflege, (3), 20–23.
- Michel, G., Kuehni, C. E., Rebholz, C. E., Zimmermann, K., Eiser, C., Rueegg, C. S., & von der Weid, N. X. (2011). Can health beliefs help in explaining attendance to follow-up care? The Swiss Childhood Cancer Survivor Study. Psycho-Oncology, 20 (10), 1034–1043. https://doi.org/10.5281/zenodo.6373324
- Rebholz, C., von der Weid, N. X., Michel, G., Niggli, F., & Kuehni, C. E. (2011). Follow-up care amongst long-term childhood cancer survivors: a report from the Swiss Childhood Cancer Survivor Study. European Journal of Cancer, 47 (1), 221–229. https://doi.org/10.1016/j.ejca.2010.09.017
- Taylor, N. C., Absolom, K., Michel, G., Urquhart, T., Gerrard, M., Jenkins, A., … Eiser, C. (2010). Comparison of self-reported late effects with medical records among survivors of childhood cancer. European Journal of Cancer, 46 (6), 1069–1078. https://doi.org/10.1016/j.ejca.2010.01.022
- Adam, M., von der Weid, N. X., Michel, G., Zwahlen, M., Lutz, J. M., Probst-Hensch, N. M., … Kuehni, C. E. (2010). Access to specialized pediatric cancer care in Switzerland. Pediatric Blood and Cancer, 54 (5), 721–727. https://doi.org/10.1002/pbc.22426
- Michel, G., Rebholz, C., von der Weid, N. X., Bergstraesser, E., & Kuehni, C. E. (2010). Psychological distress in adult childhood cancer survivors: the Swiss Childhood Cancer Survivor Study. Journal of Clinical Oncology, 28 (10), 1740–1747. https://doi.org/10.1200/JCO.2009.23.4534
- Michel, G., Taylor, N. C., Absolom, K., & Eiser, C. (2010). Benefit finding in survivors of childhood cancer and their parents: Further empirical support for the Benefit Finding Scale for Children. Child: Care, Health and Development, 36 (1), 123–129. https://doi.org/10.1111/j.1365-2214.2009.01034.x
- Michel, G., Bisegger, C., Fuhr, D. C., & Abel, T. (2009). Age and gender differences in health related quality of life of children and adolescents across Europe: a multilevel analysis. Quality of life research, 18 (9), 1147–1157. https://doi.org/10.1007/s11136-009-9538-3
- Michel, G., Greenfield, D., Absolom, K., Ross, R. J., Davies, H., & Eiser, C. (2009). Follow-up care after childhood cancer: Survivors’ expectations and preferences for care. European Journal of Cancer, 45 (9), 1616–1623. https://doi.org/10.5281/zenodo.2528161
- Greenfield, D. M., Absolom, K., Eiser, C., Walters, S. J., Michel, G., Hancock, B. W., … Coleman, R. E. (2009). Follow-up care for cancer survivors: the views of clinicians. British Journal of Cancer, 101 (4), 568–574. https://doi.org/10.1038/sj.bjc.6605160
- Absolom, K., Eiser, C., Michel, G., Walters, S. J., Hancock, B. W., Coleman, R. E., … Greenfield, D. M. (2009). Follow-up care for cancer survivors: views of the younger adults. British Journal of Cancer, 101 (4), 561–567. https://doi.org/10.1038/sj.bjc.6605213
- Perrez, M., Reicherts, M., Hänggi, Y., Horn, A. B., Michel, G., Schoebi, D., & Wilhelm, P. (2008). Assessment of health related issues in individuals’, couples’, and families‘ daily life. Zeitschrift für Gesundheitspsychologie, 16 (3), 146–149. https://doi.org/10.1026/0943-8149
- Michel, G., von der Weid, N. X., Zwahlen, M., Redmond, S., Strippoli, M. P. F., & Kuehni, C. E. (2008). Incidence of childhood cancer in Switzerland: the Swiss Childhood Cancer Registry. Pediatric Blood and Cancer, 50 (1), 46–51. https://doi.org/10.1002/pbc.21129
- Kuehni, C. E., Michel, G., Strippoli, M. P., Zwahlen, M., Brooke, A. M., Grigg, J., & Silverman, M. (2007). Parental understanding of wheeze and its impact on asthma prevalence estimates; letter to the editor. European Respiratory Journal, 29 (5), 1070. https://doi.org/10.1183/09031936.0000950
- Michel, G., von der Weid, N. X., Zwahlen, M., Adam, M., Rebholz, C. E., & Kuehni, C. E. (2007). The Swiss Childhood Cancer Registry: rationale, organisation and results for the years 2001-2005. Swiss Medical Weekly, 137 (35–36), 502–509. https://doi.org/10.5281/zenodo.2528167
- Michel, G. (2007). Daily patterns of symptom reporting in families with adolescent children. British Journal of Health Psychology, 12 (2), 245–260. https://doi.org/10.5281/zenodo.2528169
- Strippoli, M. P. F., Silverman, M., Michel, G., & Kuehni, C. E. (2007). A parent completed respiratory questionnaire for 1-year old children: repeatability. Archives of Disease in Childhood, 92 (10), 861–865. https://doi.org/10.1136/adc.2007.117978
- Röösli, M., Michel, G., Kuehni, C. E., & Spoerry, A. (2007). Cellular telephone use and time trends in brain tumour mortality in Switzerland from 1969 to 2002. European Journal of Cancer Prevention, 16 (1), 77–82. https://doi.org/10.1097/01.cej.0000203618.61936.cd
- Michel, G., Silverman, M., Strippoli, M. P., Zwahlen, M., Brooke, A. M., Grigg, J., & Kuehni, C. E. (2006). Parental understanding of wheeze and its impact on asthma prevalence estimates. European Respiratory Journal, 28 (6), 1124–1130. https://doi.org/10.1183/09031936.06.00008406
- Michel, G. (2006). The influence of neuroticism on concurrent symptom reporting: A multilevel modelling approach. Personality and Individual Differences, 41 (3), 549–560. https://doi.org/10.5281/zenodo.2528173
- Michel, G. (2006). A multilevel decomposition of variance in somatic symptom reporting in families with adolescent children. British Journal of Health Psychology, 11 (2), 345–355. https://doi.org/10.5281/zenodo.2528171
- Hjorth, L., Haupt, R., Michel, G., Kremer, L. C. M., & Skinner, R. (im Druck). Late effects of therapy and survivorship issues. In Caron, Hubert N., Biondi, Andrea, Boterberg, Tom & Doz, François (Hrsg.), Oxford Textbook of Cancer in Children, Seventh Edition. Oxford: Oxford University Press. Abgerufen von https://global.oup.com/academic/product/oxford-textbook-of-cancer-in-children-9780198797210?cc=nl&lang=en&#
- Roser, K., Michel, G., & Scheinemann, K. (2019). Neurocognitive dysfunctions and psychosocial issues. In Llahana, Sofia, Folin, Cecilia, Yedinak, Christine G & Grossmann Ashley (Hrsg.), Advanced Practice in Endocrinology Nursing (S. 1149–1160). New York: Springer. https://doi.org/10.5281/zenodo.4084864
- Perrez, M., Watzek, D., Michel, G., Schoebi, D., Wilhelm, P., & Hänggi, Y. (2005). Facets of emotion regulation in families with adolescents: A new research approach. In H. Kriesi, P. Farago, M. Kohli & M. Zarin-Nejadan (Hrsg.), Contemporary Switzerland: Revisiting the Special Case (S. 61–80). New York: Palgrave Macmillan. Abgerufen von http://doc.rero.ch/record/11561?ln=en
- Perrez, M., & Michel, G. (2005). Verarbeitung somatischer Krankheiten. In R. Schwarzer (Hrsg.), Enzyklopädie der Psychologie: Gesundheitspsychologie (S. 283–301). Göttingen: Hogrefe. Abgerufen von http://doc.rero.ch/record/209253
- Michel, G., Priboi, C., Ilic, A., Baenziger, J., Christen, S., Roser, K., & Dyntar, D. (2020). Wenn ein Grosskind an Krebs erkrankt: Die Bedürfnisse und Rolle der Grosseltern. "mitenand" Zeitschrift der Kinderkrebshilfe Schweiz, (3), 34–35. Abgerufen von https://www.kinderkrebshilfe.ch/node/1324
- Michel, G. (18. Januar 2017). Schweizer Kinderkrebsregister, Nachkontrollen von ehemaligen Kinderkrebspatientinnen und –patienten. Sonnenschein, 9.
- Michel, G. (2017). Psychosoziale Bedürfnisse von ehemaligen Kinderkrebspatienten. Krebsforschung in der Schweiz, 83–86. https://doi.org/10.5281/zenodo.2562024
- Vetsch, J., & Michel, G. (2014). Vom Krebs geheilt – und dann die Spätfolgen. Unilu Aktuell, (49), 13. https://doi.org/10.5281/zenodo.2640891
- Michel, G. (2012). Nachsorge nach Krebs im Kindesalter - ein neues Feld für die Pflege. Mitenand. Zeitschrift der Kinderkrebshilfe Schweiz, (1), 10–13. https://doi.org/10.5281/zenodo.2545588
- Michel, G. (2010). Die Nachbetreuung von ehemaligen Kinderkrebspatienten. Mitenand. Zeitschrift der Kinderkrebshilfe Schweiz, (2), 10–11.
- Pedraza Salcedo, E. C., Hendriks, M., & Michel, G. (5. Juli 2020). Lived experiences and coping strategies in bereaved families (parents, siblings, grandparents) due to childhood cancer death: A Systematic Review. Abgerufen von https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020177899
- Roser, K., Michel, G., Erdmann, F., Falck Winther, J., & Mader, L. (12. Juni 2018). The socioeconomic consequences for parents of having children with cancer: a systematic review (PROSPERO International prospective register of systematic reviews.). Abgerufen von https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=96121
- Harju, E., Roser, K., & Michel, G. (15. Januar 2018). A systematic review on the use of the emotion thermometer in individuals diagnosed with cancer (PROSPERO International prospective register of systematic reviews.). https://doi.org/CRD42018084063
- Pfeiffer, V., Redmond, S., Kuonen, R., Sommer, G., Spycher, B., Schindler, M., … Kuehni, C. (2016). Swiss Childhood Cancer Registry - Annual Report 2014-2015. University of Bern. https://doi.org/10.5281/zenodo.2573087
- Schindler, M., Mitter, V., Pfeiffer, V., Redmond, S., Wölfli, P., Kuonen, R., … Kuehni, C. E. (2015). Swiss Childhood Cancer Registry - Annual Report 2013-2014. Bern: University of Bern, Institute of Social and Preventive Medicine. https://doi.org/10.5281/zenodo.2573086
- Mitter, V., Michel, G., Wölfli, P., Gianinazzi, M. E., Rueegg, C. S., Sommer, G., … Kuehni, C. E. (2013). Swiss Childhood Cancer Registry - Annual Report 2011/2012. Bern: University of Bern, Institute of Social and Preventive Medicine. https://doi.org/10.5281/zenodo.2573083
- Mitter, V., Michel, G., Strippoli, M. P., Rüegg, C. S., Rebholz, C. E., Feller, M., … von der Weid, N. (2011). Annual Report of the Swiss Childhood Cancer Registry 2009/2010. University of Bern. https://doi.org/10.5281/zenodo.2573081
- Kuehni, C. E., Michel, G., Pyrlik, M., Strippoli, M. P., Adam, M., Rebholz, C. E., … von der Weid, N. (2009). Annual Report of the Swiss Childhood Cancer Registry 2007/2008. University of Bern. https://doi.org/10.5281/zenodo.2573079
- Michel, G., von der Weid, N., Adam, M., Rebholz, C. E., Zwahlen, M., & Kuehni, C. E. (2007). Annual Report of the Swiss Childhood Cancer Registry 2005/2006. Bern: University of Bern. Abgerufen von http://www.kinderkrebsregister.ch/index.php?id=1910
- Michel, G., & Kuehni, C. E. (2007). The Swiss Childhood Cancer Registry – Database Quality Report. University of Bern.
- Michel, G., Sturdy, M., Zwahlen, M., Strippoli, M. P., von der Weid, N., & Kuehni, C. E. (2006). Validating date and cause of death information in the Swiss Childhood Cancer Registry against death certificate information from the Swiss Federal Office of Statistics: Report of the Swiss Childhood Cancer Registry. University of Bern.
- Kuehni, C. E., Michel, G., Sturdy, M., Redmond, S., Zwahlen, M., & von der Weid, N. (2005). Annual Report of the Swiss Childhood Cancer Registry 2004-2005. Bern: University of Bern.
- Michel, G. (2017). „Die Chancen gleichen sich langfristig aus.“: Interview mit Prof. Dr. Gisela Michel, Professorin für „Health and Social Behaviour“ an der Universität Luzern. Lustat Aktuell. Abgerufen von https://www.lustat.ch/files/lustat/analysen/aktuell/2017/lustataktuell_2017_10.pdf
- Michel, G. (2017). Die Krebsliga Zentralschweiz fördert die Forschung. Herbstbrief 2017 Krebsliga Zentralschweiz. Abgerufen von https://www.krebsliga.info/de/uber-uns/publikationen/herbstbrief/
- Michel, G. (2014). Mehrzahl der Schweizer Survivors geht es gut: Interview mit Studienautorin Professor Gisela Michel, PhD, Psychologin. Sonne. Abgerufen von http://www.kinderkrebshilfe.at/MDB/pdf/35_SONNE1_14WEB.pdf
- Michel, G. (8. Oktober 2014). Fokus: Krebs bei Kindern. Fokus, Tele 1.
Achievements
- Heterogeneity of family burden among parents of children with cancer. Referat, 2nd Research Symposium Health Lucerne, University of Lucerne, Hochschule Luzern, Xund, Lucerne, 2024
- Levels and experiences of posttraumatic growth in adolescent and young adult cancer patients and survivors: A systematic review. Referat, Research Symposium Health Lucerne 2024, HSLU Hochschule Luzern; University of Lucerne; XUND, Lucerne, 2024
- Health-related quality of life in parents of long-term childhood cancer survivors: a report from the Swiss Childhood Cancer Survivor Study - Parents. Referat, Research Symposium Health, HSLU Hochschule Luzern; University of Lucerne; XUND, Lucerne, 2024
- Musculoskeletal Health of Childhood Cancer Survivors. Referat, Research Symposium Health Lucerne, Universität Luzern; Hochschule Luzern; XUND, Luzern, 2024
- To live with loss: bereavement care for parents who lost a child to cancer. Referat, Nationaler Palliative Care Kongress, palliative.ch, Biel, 2023
- Changes in Healthcare Utilization During the COVID-19 Pandemic and Potential Causes—A Cohort Study From Switzerland. Poster, 16th European Public Health Conference, European Public Health Conference, Dublin, 2023
- Insurance, Legal, and Financial Hardships of Childhood and Adolescent Cancer Survivors and their Parents – A Systematic Review. Referat, 29th PanCare Meeting, PanCare network, Gent, 2023
- Beyond the illness: exploring the multifaceted needs of bereaved parents following the death of their child to cancer. Referat, IPOS World Congress, IPOS, Milano, 2023
- Variability in parents’ family burden during their child’s cancer. Referat, IPOS 2023 World Congress, IPOS, Milano, 2023
- Psychological distress in parents of long-term survivors of childhood cancer. Referat, Annual conference of the International Psycho-Oncology Society (IPOS), International Psycho-Oncology Society (IPOS), Mailand, 2023
- Understanding caregivers’ decision to vaccinate childhood cancer survivors against COVID-19. Referat, 29th PanCare Meeting, PanCare Network, Ghent, 2023
- Posttraumatic growth and illness perception in survivors of adolescent and young adult cancer. Referat, SPOG SSPHO Scientific Meeting, Swiss Paediatric Oncology Group (SPOG); Swiss Society of Pediatric Hematology and Oncology (SSPHO), Inselspital, Bern, 2023
- Coping strategies in families who lost a child to cancer: A Scoping review. Referat, SPOG SSPHO Scientific Meeting 2023, Swiss Paediatric Oncology Group, Bern, Switzerland, 2023
- Differences in mothers’ and fathers’ perception of family burden due to their child’s cancer. Referat, SPOG SSPHO Scientific Meeting 2023, SPOG SSPHO, Bern, 2023
- Psychosexual development, sexual functioning and sexual satisfaction in long-term childhood cancer survivors: DCCSS-LATER 2 Sexuality Substudy. (Panel-)Beitrag, Swiss Pediatric Oncology Group (SPOG) / Swiss Society of Paediatric Haemato-Oncology Scientific Meeting (SSPHO), Swiss Pediatric Oncology Group (SPOG), Bern, 2023
- Psychological distress in grandparents whose grandchildren survived childhood cancer: The GROkids project. (Panel-)Beitrag, Swiss Pediatric Oncology Group (SPOG)/ Swiss Society of Paediatric Haemato-Oncology Scientific Meeting (SSPHO), Swiss Pediatric Oncology Group (SPOG), Bern, 2023
- Psychosocial late effects after childhood cancer - Implications for follow-up care. Referat, SIOP- Europe 2023, SIOP- Europe, Valencia, 2023
- Factors that influence quality of life after attending a childhood cancer follow-up care program. Referat, Schweizerische Gesellschaft für Allgemeine Innere Medizin (SGAIM) Kongress, Schweizerische Gesellschaft für Allgemeine Innere Medizin (SGAIM), Basel, 2023
- Psychosexual development, sexual functioning and sexual satisfaction in long term childhood cancer survivors: DCCSS-LATER 2 Sexuality Substudy. (Panel-)Beitrag, European Society for Sexual Medicine (ESSM), European Society for Sexual Medicine (ESSM), Rotterdam, 2023
- Screening for mental health problems in childhood cancer survivorship: A systematic review. Referat, Research Symposium Health Lucerne, Universität Luzern, Luzern, 2023
- Posttraumatic Growth and Illness Perception in Survivors of Adolescent and Young Adult cancer. Referat, Research Symposium Health Lucerne, Universität Luzern, Luzern, 2023
- Psychological outcomes and support in grandparents whose grandchildren suffer from a severe physical illness: A systematic review. (Panel-)Beitrag, Research Symposium Health Lucerne, University of Lucerne, Lucerne University of Applied Sciences and Arts, XUND, University of Lucerne, 2023
- Psychosexual development, sexual functioning and sexual satisfaction in long term childhood cancer survivors: DCCSS-LATER 2 Sexuality Substudy. (Panel-)Beitrag, Research Symposium Health Lucerne, University of Lucerne, Lucerne University of Applied Sciences and Arts, XUND, University of Lucerne, 2023
- Worries and Anxiety in Parents of Adult Survivors of Childhood Cancer: A Report from the Swiss Childhood Cancer Survivor Study-Parents. Referat, Research Symposium Health, Universität Luzern, Luzern, 2023
- Coping strategies in families who lost a child to cancer: A Systematic review. Referat, Research Symposium Health Lucerne, University of Lucerne, Lucerne, Switzerland, 2023
- Paediatric Palliative Oncology Across Europe: A Cross-Sectional Survey. Referat, Research Symposium Health Lucerne, University of Lucerne, Lucerne, Switzerland, 2023
- A Systematic Review: Care provided by grandparents of children with a chronic disease or a disability. Referat, Research Symposium Health, University of Lucerne, Lucerne, 2023
- Health-related quality of life before and during the COVID-19 pandemic in Switzerland. Referat, Research Symposium Health, University of Lucerne, Lucerne, 2023
- Education, employment, and finances in adolescent and young adult cancer survivors – a systematic review. Referat, Research Symposium Health, University of Lucerne, Lucerne, 2023
- Understanding caregivers’ decision to vaccinate childhood cancer survivors against COVID-19. Poster, International Symposium on Late Complications after Childhood Cancer (ISLCCC) 2023, St. Jude Children’s Research Hospital and the Princess Maxima Center for Pediatric Oncology, Atlanta (GA), 2023
- The Costs of Childhood Cancer: Insurance, Legal, and Financial Hardships of Childhood Cancer Survivors and their Parents - A Systematic Review. Poster, 24th IPOS World Congress of Psycho-Oncology, International Psycho-Oncolocy Society (IPOS), Mailand, 2023
- Exploring the psychosocial impact of a childhood cancer diagnosis on grandparents: negative impact, coping strategies, positive outcomes. Poster, Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Cancer (SIOP), Ottawa, 2023
- Worries and Anxiety in Parents of Adult Survivors of Childhood Cancer: A Report from the Swiss Childhood Cancer Survivor Study-Parents. Referat, International Society of Pediatric Oncology World Congress, International Society of Pediatric Oncology, Barcelona, 2022
- Paediatric Palliative Oncology Across Europe: A Cross-Sectional Survey. Poster, 54th Congress of the International Society of Paediatric Oncology, SIOP 2022,, SIOP : International Society of Paediatric Oncology, Barcelona, Spain, 2022
- Adolescent and young adult (AYA) cancer surivors in Switzerland: Possible positive outcomes. Poster, 54th Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Cancer (SIOP), Barcelona, 2022
- Sexual functioning and sexual satisfaction in childhood cancer survivors (DCCSS LATER Study). Referat, International Symposium on Late Complications after Childhood Cancer (ISLCCC) 2022, Princess Máxima Center for Pediatric Oncology, Utrecht, 2022
- The PanCareFollowUp Care Intervention: a European harmonised approach to person centred guideline based survivorship care after childhood, adolescent and young adult cancer. Poster, International Symposium on Late Complications after Childhood Cancer (ISLCCC), ISLCCC, Utrecht, 2022
- Worries and Anxiety in Parents of Adult Survivors of Childhood Cancer. Poster, International Symposium on Late Complications after Childhood Cancer (ISLCCC), Princess Máxima Center for Pediatric Oncology, Utrecht, 2022
- Paediatric palliative care (PPC) services in paediatric oncology centres in Switzerland. Referat, 5th Maruzza International Congress of Paediatric Palliative Care, Maruzza Foundation, Rome, Italy, 2022
- Psychological outcomes and support in grandparents whose grandchildren suffer from a severe physical illness: A systematic review. Referat, PanCare Meeting, U.G.I. Unione genitori italiani contro il tumore dei bambini, Torino, 2022
- Talking to children about their cancer or not? A systematic review on parents’ and healthcare providers’ preferences for information disclosure to children with cancer. Referat, 27th PanCare Meeting, PanCare Network, Torino, 2022
- Information needs among family members affected by childhood cancer: A systematic review. Referat, International Cancer Survivor Symposium, Inselspital Bern; University of Bern; University of Lucerne, Bern (webinar), 2022
- IGHG recommendations for the surveillance of education and employment in survivors of childhood, adolescent, and young adult cancers. Referat, International Cancer Survivor Symposium 2022, University Cancer Center Inselspital (UCI), the Department of General Internal Medicine, the Division of Pediatric Hematology and Oncology (all at the Inselspital, Bern), Bern (online symposium), 2022
- Education, employment, and finances in adolescent and young adult cancer survivors – a systematic review. Referat, International Cancer Survivorship Symposium 2022, Inselspital Bern; University of Bern, Bern, 2022
- Adult survivors of childhood cancer: health-related quality of life of patients from two follow-up care clinics. Referat, International Cancer Survivorship Symposium 2022, Inselspital Bern; University of Bern, Bern, 2022
- Adult survivors of childhood cancer: motivation and needs during follow-up care. Referat, International Cancer Survivorship Symposium, Inselspital Bern, Bern, 2022
- Recommendations for the surveillance of mental health, psycho-social issues, and cancer-related fatigue for survivors of childhood, adolescent, and young adult cancers. Referat, Swiss Paediatric Oncology Group Scientific Meeting 2022, Swiss Paediatric Oncology Group (SPOG), Lugano (virtual conference), 2022
- Paediatric palliative care (PPC) services in paediatric oncology centres in Switzerland. Referat, SPOG Scientific Meeting, SPOG: Schweizerische Pädiatrische Onkologie Gruppe, Bern, Online, 2022
- Health literacy and disease knowledge in young persons with sickle cell disease. Poster, Annual Scientific Conference on Sickle Cell and Thalassemia (ASCAT) 2022, European Hematology Association (EHA), Virtual, 2022
- Screening for mental health problems in childhood cancer survivorship: A systematic review. Poster, 54th Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Cancer (SIOP), Barcelona, 2022
- Paediatric Palliative Oncology Across Switzerland: A Cross-sectional Survey. Referat, National Palliative Care Congress, Palliative.ch (Marina Carobbio Guscetti, President palliative.ch ; Renate Gurtner Vontobel Managing Director palliative.ch), Biel, 2021
- Screening for mental health problems in childhood cancer survivorship. Referat, 53rd Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Cancer (SIOP), Hawaii, USA (online Conference), 2021
- Addressing mental health across the cancer trajectory. Symposium, 53rd Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Cancer (SIOP), Hawaii, USA (online Conference), 2021
- Recommendations for the surveillance of education and employment outcomes in survivors of childhood, adolescent, and young adult cancer: A report from the international late effects of childhood cancer guideline harmonization group. Poster, 53rd Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Hawaii, USA (virtual congress), 2021
- Mental health care needs in childhood cancer patients and survivors. Referat, 53rd Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Cancer (SIOP), Hawaii, USA (online congress), 2021
- Education, Employment, and Finances in Adolescent and Young Adult Cancer Survivors - A Systematic Review. Referat, Teenagers and Young Adults with Cancer (TYAC) Conference, Childern's Cancer and Leukemia Group, Leicester (online), 2021
- Health-related quality of life before and during the COVID-19 pandemic in Switzerland. Referat, Swiss Public Health Conference (SPHC): COVID-19 and the public health management of pandemics, Swiss Society for Public Health; Swiss School of Public Health (SSPH+); Institute of Social and Preventive Medicine (ISPM), University of Bern, Bern, 2021
- To know or not to know? Health literacy and COVID-19 information-seeking behavior. Referat, Swiss Public Health Conference (SPHC): COVID-19 and the public health management of pandemics, Swiss Society for Public Health; Swiss School of Public Health (SSPH+); Institute of Social and Preventive Medicine (ISPM), University of Bern, Bern, 2021
- Quality of the partner relationship during the first phase of the COVID-19 pandemic. Referat, Swiss Public Health Conference (SPHC): COVID-19 and the public health management of pandemics, Swiss Society for Public Health; Swiss School of Public Health (SSPH+); Institute of Social and Preventive Medicine (ISPM), University of Bern, Bern, 2021
- Childcare increased substantially for parents during the first lockdown of the Covid-19 pandemic in Switzerland. Referat, Swiss Public Health Conference, The Swiss Society for Public Health and the Swiss School of Public Health (SSPH+), Bern, 2021
- Post-traumatic stress and post-traumatic growth during the COVID-19 pandemic. Referat, Swiss Public Health Conference (SPHC): COVID-19 and the public health management of pandemics, The Swiss Society for Public Health and the Swiss School of Public Health (SSPH+), Bern, 2021
- Needs, desires and psychosocial outcomes in bereaved parents who lost their child due to cancer. Referat, Swiss Summer Academy in Palliative Care Research, The research network “palliative care research Switzerland” (pcrs), Münchenwiler (Murten), 2021
- Recommendations for the Surveillance of Cancer-Related Fatigue in Childhood, Adolescent and Young Adult Cancer Survivors: A Report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Referat, 25th PanCare Meeting, PanCare, Utrecht (virtuelle Konferenz), 2021
- Information needs among family members affected by childhood cancer: A systematic review. Poster, 25th PanCare meeting, Princess Máxima Center, Utrecht (online), 2021
- Adult survivors of childhood cancer: characteristics of patients from two follow-up care clinics. Poster, Frühjahrskongress Schweizerischen Gesellschaft für Allgemeine Innere Medizin (SGAIM), Schweizerischen Gesellschaft für Allgemeine Innere Medizin (SGAIM), Virtual online, 2021
- Adult survivors of childhood cancer: patient needs and approach during follow-up care in two interdisciplinary outpatient clinics in General Internal Medicine. Poster, Frühjahrskongress Schweizerischen Gesellschaft für Allgemeine Innere Medizin (SGAIM), Schweizerischen Gesellschaft für Allgemeine Innere Medizin (SGAIM), Virtual online, 2021
- Health-related quality of life in Switzerland: normative data for the SF-36 questionnaire. Poster, Swiss Public Health Conference, Public Health Schweiz; SSPH+; Universität Luzern, Luzern (virtuelle Konferenz), 2020
- Post-traumatic growth and resilience in families of childhood cancer survivors - A systematic review. Referat, Swiss Public Health Conference, University of Lucerne, Luzern, 2020
- Information needs among family members affected by childhood cancer: A systematic review. Poster, Swiss Public Health Conference 2020 «From Evidence to Public Health Policy and Practice», Swiss Society for Public Health and Swiss School of Public Health (SSPH+), Lucerne, 2020
- Recommendations for the Surveillance of Cancer-Related Fatigue in Survivors of Childhood, Adolescent and Young Adult Cancers. Poster, Swiss Public Health Conference 2020, Public Health Schweiz; SSPH+; Universität Luzern, Luzern (virtuelle Konferenz), 2020
- Palliative Care and Bereavement Services in Paediatric Oncology Institutions across Europe. Poster, Swiss Public Health Conference 2020, The Swiss Society for Public Health, Swiss School of Public Health, University of Lucerne, Online Conference, 2020
- Psychological outcomes in childhood cancer survivors before and after attending follow-up care. Poster, Swiss Public Health Conference, Society of Swiss Public Health, Lucerne, 2020
- Psychological distress in the Swiss general population. Poster, Swiss Public Health Conference, Public Health Switzerland and Seiss School of Public Health, Luzern, 2020
- COVID-19 and childhood cancer survivorship: Investigating the health beliefs and psychosocial impacts of the COVID-19 pandemic on survivors of childhood cancer. Referat, Canadian Association of Psychosocial Oncology (CAPO) Conference, Canadian Association of Psychosocial Oncology (CAPO), St. John's Canada, 2020
- The Emotion Thermometer applied in follow-up care of childhood cancer survivors. Diskussionsbeitrag, 51st Annual Congress of the International Society of Paediatric Oncology, International Society of Paediatric Oncology, Lyon, 2019
- Psychosoziale Spätfolgen nach Kinderkrebs. Referat, 2. Nationale Kinderkrebs Konferenz, Kinderkrebs Schweiz, Bern, 2020
- Feasibility and preliminary results of a short inpatient energy-management education for persons with MS-fatigue. Poster, American Congress of Rehabilitation (ACRN), American Congress of Rehabilitation (ACRN), Chicago, 2019
- The Emotion Thermometer applied in follow-up care of childhood cancer survivors. Poster, 51st Annual Congress of the International Society of Paediatric Oncology, International Society of Paediatric Oncology (SIOP), Lyon, 2019
- Post-traumatic growth in parents of long-term childhood cancer survivors and parents of the general population. Poster, 51st Annual Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Lyon, 2019
- Psychological distress in parents of long-term childhood cancer survivors. Poster, Annual Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Lyon, 2019
- Psychosocial experiences in grandparents whose grandchildren suffer from severe health impairments: A systematic review. Poster, 51st Annual Congress of the International Society of Paediatric Oncology (SIOP), SIOP Committee, Lyon, 2019
- Health-related quality of life in parents of long-term childhood cancer survivors: Swiss Childhood Cancer Survivor Study – Parents. Referat, 51st Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Lyon, 2019
- Post-traumatic growth in parents of long-term childhood cancer survivors compared to parents of the general population. Referat, 33rd Annual Conference of the European Health Psychology Society, European Health Psychology Society, Croatian Psychological Association & its Division of Health Psychology, Dubrovnik, 2019
- Health-care professionals’ opinion on psychological screening in follow-up care of childhood cancer survivors. Referat, Swiss Public Health Conference, Society of Swiss Public Health, Winterthur, 2019
- "I grew the confidence" - The health-care and communication experience for parents of children with cancer. Poster, Swiss Public Health Conference, Public Health Schweiz; Swiss School of Public Health (SSPH+), Winterthur, 2019
- Post-traumatic growth in parents of long-term childhood cancer survivors and parents of the general population. Referat, 24th PanCare Meeting Basel, PanCare Network, Basel, 2019
- Grandparents’ involvement and psychosocial outcomes when a grand child is diagnosed with cancer: Acute and long-term outcomes. Referat, 24th PanCare Meeting, PanCare Committee, Basel, 2019
- The Emotion Thermometer applied in follow-up care of childhood cancer survivors. Referat, 24th PanCare Meeting, PanCare, Basel, 2019
- Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: A report from the PanCareSurFup Guidelines Working Group. Referat, PanCare Meeting, PanCare, Basel, 2019
- Response behaviour in a study on parents of long-term childhood cancer survivors and comparisons. Referat, 24th PanCare Meeting, PanCare, Basel, 2019
- Psychosocial experiences in grandparents whose grandchildren suffer from severe health impairments: A systematic review. (Panel-)Beitrag, 33rd Conference of the European Health Psychology Society (EHPS), EHPS Committee, Dobrovnik, 2019
- Psychosocial experiences in grandparents whose grandchildren suffer from severe health impairments: A systematic review. (Panel-)Beitrag, Swiss Public Health Conference, Swiss Public Health Conference Committee, Winterthur, 2019
- Grandparental care in chronically ill children: a systematic review. Poster, 51st Annual Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Lyon, 2019
- Health-care professionals’ opinion on psychological screening in follow-up care of childhood cancer survivors. Referat, 23rd PanCare Meeting, PanCare, Opatija, 2019
- Grandparents of chronically ill children: Psychological experiences and care provided – Two systematic reviews. Poster, 23rd PanCare Meeting, PanCare Committee, Opatija, 2019
- "I grew the confidence" - The health-care and communication experience for parents of children with cancer. Poster, Cancer Survivorship Conference, Flinders Centre for Innovation in Cancer, Clinical Oncology Society of Australia, Sydney, 2019
- Grandparents' involvement and psychosocial outcomes when a grandchild is diagnosed with cancer. Referat, SPOG Scientific Meeting, Swiss Pedriatic Oncology Group, Lugano, 2019
- Characterizing the patients of the first Swiss interdisciplinary late effects clinic for adult survivors of childhood cancer. (Panel-)Beitrag, Annual Scientific Meeting of the Swiss Paediatric Oncology Group (SPOG), SPOG Committee, Lugano, 2019
- Grandparental care in chronically ill children: a systematic review. Referat, Annual Scientific Meeting of the Swiss Paediatric Oncology Group (SPOG), Swiss Paediatric Oncology Group (SPOG), Lugano, 2019
- Health professionals’ experience with psychological screening in follow-up care of childhood cancer survivors. Referat, Symposium on Psychosocial Aspects of Childhood Cancer, Danish Cancer Society, Copenhagen, 2019
- Post-traumatic growth in parents of long-term childhood cancer survivors and parents of the general population. Referat, Swiss Public Health Conference, Public Health Schweiz; Swiss School of Public Health (SSPH+), Winterthur, 2019
- "I grew the confidence" - The health-care and communication experience for parents of children with cancer. Referat, 33rd Conference of the European Health Psychology Society, European Health Psychology Society (EHPS), Dubrovnik, 2019
- A systematic review on the use of the emotion thermometer in individuals diagnosed with cancer. Poster, International Society of Paeditric Oncology (SIOP), International Society of Paeditric Oncology (SIOP), Kyoto, 2018
- Relationship status and quality of partner relationship among parents of long-term childhood cancer survivors. Referat, International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Kyoto, 2018
- The long-term impact of cancer: evaluating psychological distress in adolescent and young adult cancer survivors in Switzerland. Referat, PanCare Meeting, PanCare, Paris, 2018
- The first interdisciplinary late effects clinic for adult survivors of childhood cancer in Switzerland - Description and first results. (Panel-)Beitrag, 22nd PanCare Meeting, PanCare Committee, Paris, 2018
- A support gap? The psychosocial situation of Swiss childhood cancer survivors. Poster, Tagung Gesundheit & Armut, Berner Fachhochschule, Bern, 2018
- Post-traumatic stress symptoms in parents of long-term childhood cancer survivors – Data from the Swiss Childhood Cancer Survivor Study. Poster, Australian and New Zealand Children's Haematology/Oncology Group (ANZCHOG) Annual Scientific Meeting, Australian and New Zealand Children's Haematology/Oncology Group (ANZCHOG), Sydney, 2018
- Feasibility study of an inpatient fatigue education. Poster, European Network for best Practice and Research in MS Rehabilitation (EuRIMS), European Network for best Practice and Research in MS Rehabilitation (EuRIMS), Amsterdam, 2018
- Inpatient fatigue-management education. Poster, European Network for best Practice and Research in MS Rehabilitation (EuRIMS), European Network for best Practice and Research in MS Rehabilitation (EuRIMS), Amsterdam, 2018
- A systematic review on the use of the emotion thermometer in individuals diagnosed with cancer. Referat, PanCare Meeting, PanCare, Prag, 2018
- Life after Cancer - Needs for Psychosocial Support in Switzerland. Referat, PanCare Meeting, PanCare, Prag, 2018
- Supportive needs in parents of childhood cancer survivors. Referat, PanCare Meeting, PanCare, Prag, 2018
- Needs for Psychosocial Support in Childhood Cancer Survivors. Referat, Annual Scientific Meeting of the Swiss Paediatric Oncology Group (SPOG), Swiss Paediatric Oncology Group (SPOG), Lugano, 2018
- Post-traumatic Stress Symptoms in Parents of Long-term Childhood Cancer Survivors. Referat, International Psycho-Oncology Society (IPOS), International Psycho-Oncology Society (IPOS), Hongkong, 2018
- Workshop Psychosoziale Bedürfnisse nach Kinderkrebs. Workshop, 1. Nationale Kinderkrebs Konferenz, Kinderkrebs Schweiz, Bern, 2017
- Improving the quality of follow-up care for pediatric cancer survivors: a mixed-methods study on preferences for models of survivorship care. Poster, 49th Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Washington DC, 2017
- Health-related quality of life in parents of long-term childhood cancer survivors. Referat, PanCare Meeting, PanCare, Lübeck, 2017
- Post-traumatic stress symptoms and predictors in parents of long-term childhood cancer survivors. Referat, PanCare Meeting, PanCare, Lübeck, 2017
- Health-related quality of life in adolescent and young adult cancer survivors. Referat, PanCare Meeting, PanCare, Lübeck, 2017
- Offspring in female childhood cancer survivors in Switzerland. Referat, PanCare Meeting, PanCare, Lübeck, 2017
- Perceived information provision and information needs in adolescent and young adult cancer survivors. Referat, PanCare Meeting, PanCare, Lübeck, 2017
- Can the theory of planned behaviour help explain follow-up attendance of childhood cancer survivors? Referat, Conference of the European Health Psychology Society (EHPS), European Health Psychology Society (EHPS), Padova, 2017
- Can the theory of planned behaviour help explain follow-up attendance of childhood cancer survivors? Referat, PanCare Meeting, PanCare, Lund, 2017
- Adult survivors of childhood cancer and unemployment – update of a systematic review and meta-analysis. Poster, PanCare Meeting, PanCare, Lund, 2017
- Adult survivors of childhood cancer and unemployment – update of a systematic review and meta-analysis. Referat, Annual Scientific Meeting of the Swiss Paediatric Oncology Group (SPOG), Swiss Paediatric Oncology Group (SPOG), Lugano, 2017
- Education, employment and marriage in survivors of teenage and young adult cancer. Poster, 48th Congress of the International Society of Paeditric Oncology (SIOP), International Society of Paeditric Oncology (SIOP), Dublin, 2016
- Follow-up care attendance in survivors of adolescent and young adult cancer: implementation of the Theory of Planned Behaviour. Referat, 48th Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Dublin, 2016
- Can the Theory of Planned Behavior help explain follow-up attendance of childhood cancer survivors? Referat, 48th Congress of the International Society of Paediatric Oncology (SIOP), International Society of Paediatric Oncology (SIOP), Dublin, 2016
- Household income and risk-of-poverty of parents of long-term childhood cancer survivors. Poster, 5th European Symposium on Late Complications after Childhood Cancer (ESLCCC), European Symposium on Late Complications after Childhood Cancer (ESLCCC), Kopenhagen, 2016
- Evidence-based Recommendations for the Organisation of Long-term Follow-up Care for Childhood and Adolescent Cancer Survivors: A Report from the PanCareSurFup-Consortium. Poster, 5th European Symposium on Late Complications after Childhood Cancer (ESLCCC), European Symposium on Late Complications after Childhood Cancer (ESLCCC), Kopenhagen, 2016
- Follow-up care attendance in survivors of adolescent and young adult cancer: implementation of the Theory of Planned Behaviour. Poster, 5th European Symposium on Late Complications after Childhood Cancer (ESLCCC), European Symposium on Late Complications after Childhood Cancer (ESLCCC), Kopenhagen, 2016
- Can the Theory of Planned Behavior help explain follow-up attendance of childhood cancer survivors? Poster, 5th European Symposium on Late Complications after Childhood Cancer (ESLCCC), European Symposium on Late Complications after Childhood Cancer (ESLCCC), Kopenhagen, 2016
- Long-term childhood cancer survivors’ and parents’ information needs: implications for survivorship models of care. Poster, Annual meeting of the Multinational Association of Supportive Care in Cancer (MASCC), Multinational Association of Supportive Care in Cancer (MASCC), Adelaide, 2016
- Parents’ preferences for the organization of long-term follow-up of childhood cancer survivors. Referat, Annual meeting of the Multinational Association of Supportive Care in Cancer (MASCC), Multinational Association of Supportive Care in Cancer (MASCC), Adelaide, 2016
- Long-term childhood cancer survivors’ and parents’ information needs: implications for survivorship models of care. Referat, Australian and New Zealand Children's Haematology/Oncology Group (ANZCHOG) Annual Scientific Meeting, Australian and New Zealand Children's Haematology/Oncology Group (ANZCHOG), Cairns, 2016
- Harmonization of guidelines for the long-term follow-up of childhood, adolescent, and young adult cancer survivors. Referat, Swiss Paediatric Oncology Group (SPOG) Scientific Meeting, Swiss Paediatric Oncology Group (SPOG), Bern, 2016
- Can the Theory of Planned Behavior help explain follow-up attendance of childhood cancer survivors? Referat, Swiss Paediatric Oncology Group (SPOG) Scientific Meeting, Swiss Paediatric Oncology Group (SPOG), Bern, 2016
- Posttraumatic growth and illness perception in survivors of adolescent and young adult cancer. Referat, International Visitors Meeting, University of Southampton, Southampton, 2023
- Bedürfnisse von Betroffenen nach Krebs im Kindesalter. Referat, Interne Weiterbildung der Krebsliga Schweiz, Krebsliga Schweiz, Bern, 2022
- Krebs bei Kindern und Jugendlichen – eine Erkrankung der ganzen Familie. Präsentation, Die Zentralschweiz gestaltet die Gesundheitsversorgung von morgen – Das Departement Gesundheitswissenschaften und Medizin stellt sich vor, GWM Universität Luzern, Luzern, 2022
- Childhood cancer and its impact on the family. Präsentation, Psychosocial Working Group Meeting, Princes Maxima Center for Paediatric Oncology, Psychosocial Working Group, Utrecht, 2022
- COVID-19 information-seeking, health literacy, and worry and anxiety during the early stage of the pandemic in Switzerland: A cross-sectional study. Präsentation, Research Seminar in Health Sciences, Department of Health Sciences and Medicine, Lucerne, 2022
- Psychosoziale Spätfolgen nach einer Krebserkrankung. Referat, Gesundheit stärken – Informationsveranstaltung für Survivor einer Krebserkrankung im Kindes- oder Jugendalter, betroffene Familien und interessierte Fachpersonen, Kinderspital Aarau, Aarau, 2021
- Childhood Cancer –Implications for the life of patients and their family. Referat, Departemental Colloquium, Department of Liberal Arts, Indian Institute of Technology Hyderabad, Hyderabad, 2021
- Childhood Cancer – a diagnosis with implications for the life of patients and their family. Referat, Institutskolloquium, Institut für Pschologie, Universiät Bern, Bern, 2020
- Information needs in childhood cancer: A systematic review of the literature on relatives of childhood cancer patients and survivors. Präsentation, Research Seminar in Health Sciences, Department of Health Sciences and Medicine, Lucerne, 2020
- Exklusiv für Survivors: Psychosoziale Spätfolgen nach Kinderkrebs. Moderation, 2. Nationale Kinderkrebs Konferenz, Kinderkrebs Schweiz, Bern, 2020
- Workshop Psychosoziale Spätfolgen nach Kinderkrebs. Workshop, 2. National Kinderkrebskonferenz, Kinderkrebs Schweiz, Bern, 2020
- Psychosoziale Spätfolgen nach Kinderkrebs. Workshop, Erste Survivorkonferenz, Kinderkrebs Schweiz, Bern, 2017
- 2024 International Symposium on Long-Term Complications of Childhood Cancer, Mitglied Organisationskomitee, Lucerne, 2024
- International Cancer Survivorship Symposium, Mitglied Organisationskomitee, Moderation einer Sektion/eines Panels, Bern, 2022
- Fourteenth PanCare Meeting, (Co-)Organisator/in, Luzern, 2014
- e-QuoL Needs Study (e-QuoL-NS). e-QuoL Kick-off Meeting, Angers, 2024
- Trauerbegleitung für Eltern nach dem Tod ihres Kindes an Krebs. Netzwerktreffen für Mitglieder, Online, 2023
- Healthcare utilization during the COVID-19 pandemic: changes and potential causes - A cohort study from the Swiss general population. PopHealthLab Science Meeting, University of Fribourg, 2022
- Psychosexual development, sexual functioning and sexual satisfaction in long term childhood cancer survivors: DCCSS-LATER 2 Sexuality Substudy. Poppi Meeting, Psycho-oncology, Utrecht, 2022
- Sexual functioning and sexual satisfaction in childhood cancer survivors (DCCSS LATER Study). Psycho-Oncologie M4C, Utrecht, 2022
- Psychosocial consequences of childhood cancer for the life of patients and their family. Colloquium, Institute of Psychology, University of Zurich, Zürich, 2022
- Models of Survivorship Care. Late Effects in Childhood and Adolescent Cancer Survivors A Course by PanCare and SIOP Europe, Online Virtual, 2022
- Corona Immunitas: The impact of the pandemic on the population of the Canton Lucerne. Research Seminar in Health Sciences, Universität Luzern, 2021
- IGHG guidelines for surveillance of psycho-social late effects: Development of guidelines and recommendations for surveillance of cancer-related fatigue. 53rd Congress of the International Society of Paediatric Oncology (SIOP), Hawaii, USA (online congress), 2021
- Guidelines for Surveillance of Education and Employment Outcomes. 53rd Congress of the International Society of Paediatric Oncology (SIOP), Hawaii, USA (online congress), 2021
- Psychosocial experiences in grandparents whose grandchildren suffer from severe health impairments: A systematic review. Resaerch Seminar in Health Sciences, University of Lucerne, 2020
- Psychological distress in parents of very long-term childhood cancer survivors. PanCare Meeting, Opatija, 2019
- Parents of childhood cancer survivors: How do they fare in the long term. Congress of the International Society of Paediatric Oncology (SIOP), Washington DC, 2017
- Psychische Spätfolgen nach Krebs in der Kindheit. Survivortagung, Nottwil, 2016
- What do we learn from the Swiss Childhood Cancer Survivor Study? Late effects and outcomes. 40 Year Symposium of the Swiss Childhood Cance Registry, Bern, 2016
- Wünsche für die Organisation der Nachsorge in der Schweiz (aus Sicht von Survivors, Eltern und Fachpersonen). Survivortagung, Luzern, 2015
- Psychosocial issues as benchmarks for successful transition from paediatric to adult health care service. 16th PanCare Meeting, Wien, 2015
- Pancare - Ein europäisches Netzwerk zur Verbesserung der Nachsorge für ehemalige KinderkrebspatientInnen. 17. Schweizer Onkologiepflegekongress, Bern, 2015
- The Swiss Childhood Cancer Survivor Study. PsyKo, Nationaler Kongress Psychologiestudierende, Jaun, 2015
- I am a survivor! Wie geht es Menschen, die als Kinder oder Jugendlich Krebs überlebten? 14. International Seminar Onkologische Pflege – Fortgeschrittende Praxis, St. Gallen, 2011
- The Swiss Childhood Cancer Registry: Development and Results. Forschungsseminar, Forschungsabteilung Schweizerisches Paraplegikerzentrum Nottwil, Nottwil, 2011
- Nachsorge nach einer Krebserkrankung im Kindesalter: Ein neues Feld für die Pflege. 13. Schweizer Onkologiepflegekongress, Bern, 2011
- Datenerhebung mittels Tagebuchmethode [Data collection using diary methods]. Forschungsseminar, Basel, 2002
- Top Downloaded Article: "Recommendations for the surveillance of education and employment outcomes in survivors of childhood, adolescent, and young adult cancer: A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group", Cancer (Wiley), 2024
- LORY-Preis, Universität Luzern, 2020
- Key paper of the month September, Psycho-Oncology, 2019
- Psycho-Oncology, 2024
- Psycho-Oncology, 2023
- Psycho-Oncology, 2023
- Pediatric Blood & Cancer, 2023
- Psycho-Oncology, 2023
- Psycho-Oncology, 2023
- JAMA Pediatrics, 2023
- PLOS One, 2023
- Psycho-Oncology, 2022
- Psycho-Oncology, 2022
- Pediatric Blood and Cancer, 2022
- Psycho-Oncology, 2022
- Psycho-Oncology, 2022
- Acta Paediatrica, 2022
- European Journal of Cancer Paediatric Oncology, 2022
- Pediatric Blood & Cancer, 2021
- Cancer, 2021
- Pediatric Blood & Cancer, 2021
- BMC Palliative Care, 2021
- Psychooncology, 2021
- Psychooncology, 2020
- BMC Health Services Research, 2020
- Cancer, 2020
- Pediatric Blood and Cancer, 2020
- Cancer, 2020
- Psycho-Oncology, 2020
- Psycho-Oncology, 2020
- Psycho-Oncology, 2020
- Journal of Cancer Survivorship, 2020
- Journal of Rehabilitation Medicine, 2020
- Pediatric Blood & Cancer, 2020
- British Journal of Cancer, 2020
- Cancer, 2020
- European Journal of Cancer Care, 2019
- JMIR Research Procols, 2019
- Journal of Psychosocial Oncology, 2019
- European Respiratory Journal, 2019
- Pediatric Blood and Cancer, 2019
- BMC Health Services Research, 2019
- Psychooncology, 2019
- Journal of Psychosocial Oncology, 2019
- Psychooncology, 2018
- Cancer, 2018
- Supportive Care in Cancer, 2018
- European Journal of Cancer, 2018
- European Respiratory Journal, 2018
- European Journal of Cancer, 2018
- Scandinavian Journal of Psychology, 2018
- Annals of Oncology, 2017
- Asia Pacific Journal of Clinical Oncology, 2017
- Pediatric Blood & Cancer, 2017
- American Journal of Public Health, 2017
- Supportive Care in Cancer, 2017
- Psychooncology, 2017
- Supportive Care in Cancer, 2017
- Pediatric Blood & Cancer, 2016
- Brown University, Rhode Island, 2023
- Universität Basel, Basel, 2022
- Universität Basel, Basel, 2022
- Krebsforschung Schweiz / Krebsliga Schweiz, Bern, 2022
- Universität Zürich, Zürich, 2022
- Chilren's Health Foundation Ireland, Crumlin, 2021
- The French Society for Children Cancer and Leukemia (SFCE), Nantes, 2021
- Swiss National Science Foundation, Bern, 2021
- University of New South Wales, Sydney, 2020
- Swiss National Science Foundation, Bern, 2020
- Swiss National Science Foundation, Bern, 2020
- Swiss National Science Foundation, Bern, 2020
- Children with Cancer UK, London, 2019
- Swiss National Science Foundation, Bern, 2019
- Swiss National Science Foundation, Bern, 2019
- Swiss National Science Foundation, Bern, 2019
- Gert und Susanna Mayer Stiftung, Wuppertal, 2019
- Swiss National Science Foundation, Bern, 2019
- The Netherlands Organisation for Scientific Research (NWO), The Hague, 2019
- Swiss National Science Foundation, Bern, 2018
- Universität Zürich, Zürich, 2018
- Swiss National Science Foundation, Bern, 2017
- Swiss Society of Pediatric Hematology and Oncology (SSPHO), Mitglied, Schweiz, 2022–
- SIOPE (SIOP Europe), Mitglied, Schweiz, 2018–
- International Society of Paediatric Oncology (SIOP), Mitglied, Niederlande, 2017–
- International Psycho-Oncology Society (IPOS), Mitglied, Kanada, 2014–
- PanCare, Vorstandsmitglied, Niederlande, 2009–
- Schweizerische Gesellschaft für Gesundheitspsychologie SGGPsy, Mitglied, Schweiz, 2009–
- Föderation Schweizer PsychologInnen, Mitglied, Schweiz, 2001–
- Schweizer Gesellschaft für Psychologie, SGP, Mitglied, Schweiz, 2001–
- European Health Psychology Society (EHPS), Mitglied, Großbritannien, 2001–2018
- (Pro-)Rektor/in, 2024–
- Integritätsbeauftragte der Universität Luzern, 2023–
- Nachhaltigkeitskommission, 2021–
- Academic Co-Director of the PhD Program in Health Sciences, 2019–
- Mitglied Clinical Science Group (Master Medizin), 2018–
- Mitglied der Forschungskommission, 2014–
- Working Group for the Development of a Guideline for Search Commissions, 2022–2023
- Mitglied der Gleichstellungskommission, 2021–2022
- Mitglied Berufungskommission, 2022–2022
- Academic Director of the Master in Health Sciences, 2017–2019
- Mitglied Berufungskommission, 2018–2019
- Mitglied eines wissenschaftlichen Beirats, LE-Na Project (funded by the Hector Stiftung, PI Prof. Dr. Thorsten Langer), Universitätsklinikum Schleswig-Holstein, Germany, 2023–
- Mitglied, PanCare Guidelines Group, 2022–
- Vorstandsmitglied, SIOPE Psychosocial Working Group, 2022–
- Vorstandsmitglied, SSPH+ Inter-university Graduate Campus, 2019–
- Mitglied eines wissenschaftlichen Beirats, Swiss Childhood Cancer Registry, 2018–
- Chair of the PanCareSurFup Sustainability, Publication and Authorship Group, PanCareSurFup, 2017–
- Vorstandsmitglied, Board of the Clinical Trial Unit – Central Switzerland (CTU-CS), 2015–
- Vorstandsmitglied, Swiss School of Public Health+, 2014–2022
- Kommissionsmitglied, International Society of Paediatric Oncology (SIOP), Scientific Programme Advisory Committee, 2017–2021
- Vorstandsmitglied, PanCare, 2011–2019