Dr. Manya Hendriks
Senior Research Fellow (Prof. Dr. Gisela Michel)
T +41 41 229 59 62 • Room 1.B08 • manya.hendriks @ unilu.ch
Projects of the Health and Social Behaviour Team
CV
Manya Hendriks studied Medical Anthropology and Sociology at the University of Amsterdam, the Netherlands after which she completed the Advanced Erasmus Mundus Master of Bioethics at the University of Leuven, Belgium. In September 2014, she started her PhD in Bioethics at the Institute of Biomedical Ethics and History of Medicine at the University of Zurich in collaboration with the Department of Neonatology at the University Hospital Zurich. She conducted her PhD in the project ‘Extremely Preterm Infants: Factors in Decision-Making’ which was funded by the Swiss National Science Foundation (NFP67: End-of-life). The project examined the attitudes and values that play a role in end-of-life decisions for preterm infants of all stakeholders (i.e. society, health care providers and parents in Switzerland). She specifically focused on the societal attitudes and values and the experiences of parents of extreme preterm infants who were born and died at t a University Hospital in Switzerland. She completed her PhD with the thesis entitled “At the Beginning and the End: End of Life Decision-Making for Extremely Preterm Infants” in October 2017.
Since November 2017, she works as a Research Fellow at the Department of Health Sciences and Medicine of the University of Lucerne.
Research
My research interests are the ethical implications of the current standard of (psychosocial) care for childhood cancer survivors. My current research focuses on young adult cancer survivors and the needs and preferences for psychosocial care after childhood cancer. Aims are to identify psychosocial problems that childhood cancer survivors encountered after being diagnosed and treated for their cancer, then evaluate how survivors coped with such problems and where they found help and support, and finally assess survivors’ needs and preferences for future psychosocial care.
Projects
Publications
- Harju, E., Hendriks, M., Roser, K., & Michel, G. (2020). Health-care professionals’ opinions on psychological screening in follow-up care for childhood cancer survivors. Swiss Medical Weekly, 150, 1–9. https://doi.org/10.5281/zenodo.4193853
- Hendriks, M. J., Harju, E., & Michel, G. (2020). The unmet needs of childhood cancer survivors in long-term follow-up care A qualitative study. Psycho-Oncology; Psycho‐Oncology, 0. https://doi.org/https://doi.org/10.1002/pon.5593
- Hendriks, M. J., Pedraza, E. C., Tinner, E. M., Bergstraesser, E., & Michel, G. (2020). Wenn ein Kind an Krebs stirbt ... Auswirkungen auf die Eltern und Bedürfnisse für die Palliativ- und Trauerbegleitung in der pädiatrischen Onkologie. Schweizer Zeitschrift für Onkologie, (4), 32–34. https://doi.org/10.5281/zenodo.4268368
- Hendriks, M., Kuehni, C. E., Michel, G., & von der weid, N. X. (2019). Follow-up Care in Childhood Cancer Survivors: Improving Services in Switzerland. Schweizer Krebsbulletin, 39 (3), 216–218. https://doi.org/10.5281/zenodo.3560770
- Bucher, H. U., Klein, S. D., Hendriks, M. J., Baumann-Holzle, R., Berger, T. M., Streuli, J. C., … Swiss Neonatal End-of-Life Study, G. (2018). Decision-making at the limit of viability: differing perceptions and opinions between neonatal physicians and nurses: BMC Pediatr. BMC Pediatr, 18 (1), 81 ff. https://doi.org/10.1186/s12887-018-1040-z
- Hendriks, M. J., & Lantos, J. D. (2018). Fragile lives with fragile rights: Justice for babies born at the limit of viability: Bioethics. Bioethics, 32 (3), 205 ff. Retrieved from https://onlinelibrary.wiley.com/doi/pdf/10.1111/bioe.12428
- Hendriks, M. J., & Abraham, A. (2018). When the Beginning is the End: Suffering of Parents Whose Extremely Preterm Baby Died in the NICU. Bioethica Forum. Bioethica Forum. Schweizer Zeitschrift für Biomedizinische Ethik, 11 (1), 27 ff.
- Hendriks, M. J., Klein, S. D., Bucher, H. U., Baumann-Holzle, R., Streuli, J. C., & Fauchere, J. C. (2017). Attitudes towards decisions about extremely premature infants differed between Swiss linguistic regions in population-based study: Acta Paediatrica. Acta Paediatrica, 106 (3), 423 ff. https://doi.org/10.1111/apa.13680
- Hendriks1, M. J., & Abraham2, A. (2017). End-of-Life Decision Making for Parents of Extremely Preterm Infants. Journal of Obstetric Gynecologic & Neonatal Nursing, 46 (5), 727–736. https://doi.org/10.1016/j.jogn.2017.06.006
- Klein, S. D., Bucher, H. U., Hendriks, M. J., Baumann-Hoelzle, R., Streuli, J. C., Berger, T. M., & Fauchere, J. C. (2017). Sources of distress for physicians and nurses working in Swiss neonatal intensive care units: A survey: Swiss Medical Weekly. Swiss Medical Weekly, 147, 1 ff. https://doi.org/10.4414/smw.2017.14477
- Abraham, A., & Hendriks, M. J. (2017). “You can only give warmth to your baby when it’s too late”: Parents’ bonding with their extremely preterm and dying child: Qualitative Health Research. Qualitative Health Research, 27 (14), 2100 ff. https://doi.org/10.1177/1049732317721476
Achievements
- Perinatal Palliative Care Services and Needs of Caregivers in Swiss Perinatal Centres: A Survey. Lecture, online Forschungswebinar, Palliativ.ch, Zurich, 2020
- Palliative Care and Bereavement Services in Paediatric Oncology Institutions across Europe. Poster, Swiss Public Health Conference 2020, The Swiss Society for Public Health, Swiss School of Public Health, University of Lucerne, Online Conference, 2020
- Palliative care services and needs of health care professionals working in Swiss perinatal centres - A nationwide survey. Lecture, Annual Meeting of the Swiss Society of Neonatology, Swiss Society of Neonatology, St. Gallen, 2020
- Needs and Perspectives of Parents and Healthcare Professionals in Perinatal Palliative Care. Lecture, European Academy of Pediatric Societies, European Academy of Pediatric Societies, Zurich, 2020
- A mixed methods study on perinatal palliative care services in Switzerland. Poster, Research in Palliative Care, Schweizerische Akademie der Medizinischen Wissenschaften, Bern, 2019
- Communication with families of critically ill newborns: New ways of research. Key Note, Ethical challenges in the care of very sick infants, Schweizerische Gesellschaft für Biomedizinische Ethik, Bigorio, 2019
- Getting started: Setting up a research project in paediatric palliative care. Lecture, Research in Palliative Care, Schweizerische Akademie der Medizinischen Wissenschaften, Bern, 2019
- Health-care professionals’ opinion on psychological screening in follow-up care of childhood cancer survivors. Lecture, Swiss Public Health Conference, Society of Swiss Public Health, Winterthur, 2019
- Palliative care services for the perinatal population in Switzerland. Lecture, European Neonatal Societies, joint European Neonatal Societies (jENS), Maastricht, 2019
- A support gap? The psychosocial situation of Swiss childhood cancer survivors. Poster, Tagung Gesundheit & Armut, Berner Fachhochschule, Bern, 2018
- Life after Cancer - Needs for Psychosocial Support in Switzerland. Lecture, PanCare Meeting, PanCare, Prag, 2018
- Needs for Psychosocial Support in Childhood Cancer Survivors. Lecture, Annual Scientific Meeting of the Swiss Paediatric Oncology Group (SPOG), Swiss Paediatric Oncology Group (SPOG), Lugano, 2018
- Exklusiv für Survivors: Psychosoziale Spätfolgen nach Kinderkrebs. Moderation, 2. Nationale Kinderkrebs Konferenz, Kinderkrebs Schweiz, Bern, 2020
- Workshop Psychosoziale Spätfolgen nach Kinderkrebs. Workshop, 2. National Kinderkrebskonferenz, Kinderkrebs Schweiz, Bern, 2020
- Vulnerabilität und Shared decision-making im Kontext der Neonatologie. Moderation, USZ Ethiktag 2020: Vulnerable Patient*Innen im Akutspital, Klinische Ethik, Universitätsspital Zürich, Zurich, 2020
- When the beginning is the end: Suffering of parents whose extremely preterm baby died in the NICU. Lecture, Contemporary debates in bioethics: Informal caregiving at the end of life, Institute for biomedical ethics, University of Basel, Basel, Switzerland, Basel, 2019
- LORY-Preis, Universität Luzern, 2020
- Best Oral Short Presentation, Swiss Society of Neonatology, 2020
- Q-Award 2019 for "Quality Assessment of Communication between Health Care Professionals and Parents of Critically Ill Newborns", University Hospital Zurich, Switzerland, 2019
- Young Investigator Award for presentation on “Fragile lives with fragile rights: Justice for babies born at the limit of viability.“, European Neonatal Ethics Conference, Oxford, United Kingdom, 2016
- Health and Social Care, 2021
- Nursing Ethics, 2020
- European Journal of Cancer Care, 2020
- Medical Ethics, 2020
- American Journal of Bioethics, 2020
- Frontiers in Pediatrics, 2020
- Supportive Care in Cancer, 2020
- Nursing Ethics, 2019
- American Journal of Pediatrics, 2019
- Scientific Reports, 2019
- BMJ Open, 2019
- Medicine, Health Care and Philosophy, 2019