Prof. Dr. Jerome Bickenbach
Permanent Visiting Professor
CV
Jerome holds a PhD in Philosophy and a LL.B and is a professor emeritus at Queen’s University. Since 1995 he has been a consultant with the World Health Organization (WHO) working on drafting, testing and implementation of the ICF, and continues to consult with WHO on international disability social policy. His research is in disability studies, using qualitative and quantitative research techniques within the paradigm of participatory action research. Most recently his research includes disability quality of life and the disability critique, disability epidemiology, universal design and inclusion, modelling disability statistics for population health surveys, the relationship between disability and wellbeing, disability and ageing issues and the application of ICF to monitoring the implementation of the UN Convention on the Rights of Persons with Disabilities. As a lawyer, Prof. Bickenbach was a human rights litigator, specializing in anti-discrimination for persons with intellectual impairments and mental illness. Since 2007, he has led the Disability Policy Unit at Swiss Paraplegic Research in Nottwil.
Dr. Jerome Bickenbach, PhD, LL.B is a permanent visiting professor at the Faculty of Health Sciences and Medicine at the University of Lucerne and professor in the Department of Philosophy and Faculties of Law and Medicine at Queen's University. He is the author of Physical Disability and Social Policy (1993) and the co-editor of Introduction to Disability (1998), Disability and Culture: Universalism and Diversity (2000), A Seat at the Table: Persons with Disabilities and Policy Making (2001), Quality of Life and Human Difference (2003) and numerous articles and chapters in disability studies, focusing on the nature of disability and disability law and policy. He is a content editor of Sage Publications' proposed 5 volume Encyclopaedia of Disability. Since 1995 he has been a consultant with the World Health Organization (WHO) working on the revision of the ICIDH to the final draft leading to the ICF. Prof. Bickenbach has participated in nearly all revision activities, and continues to consult with WHO on ICF dissemination and international disability social policy. His research is in disability studies, using qualitative and quantitative research techniques within the paradigm of participatory action research. Most recently his research includes disability quality of life and the disability critique, disability epidemiology, universal design and inclusion, modelling disability statistics for population health surveys, the relationship between disability and health, and the ethics and the application of ICF to monitoring the implementation of the UN Convention on the Rights of Persons with Disabilities. As a lawyer, Prof. Bickenbach was a human rights litigator, specializing in anti-discrimination for persons with intellectual impairments and mental illness.
Research
- disability health and social policy
- disability law
- functioning and disability conceptualization
- definition and epidemiology
- human rights and disability
Publications
- Sabariego, C., Ehrmann, C., Bickenbach, J., Pacheco Barzallo, D., Schedin Leiulfsrud, A., Strom, V., … Stucki, G. (2023). Ageing, functioning patterns and their environmental determinants in the spinal cord injury (SCI) population: A comparative analysis across eleven European countries implementing the International Spinal Cord Injury Community Survey. PLoS One, 4. https://doi.org/10.1371/journal.pone.0284420
- Diaz, M. A., Bickenbach, J., Sabariego, C., & Bernard, R. M. (2023). Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying. J Appl Res Intellect Disabil.
- Seijas, V., Maritz, R., Mishra, S., Bernard, R., Fernandes, P., Lorenz, V., … Sabariego, C. (2023). Rehabilitation in Primary Health Care for the ageing population: A secondary analysis from a scoping review of rehabilitation models for the ageing population. BMC Health Services Research.
- Bickenbach, J., Rubinelli, S., Sabariego, C., & Stucki, G. (2023). The Learning Rehabilitation System: Strengthening an intersectoral strategy to improve functioning of an ageing population. Health Policy, 104866 ff. https://doi.org/10.1016/j.healthpol.2023.104866
- Bickenbach, J., Rubinelli, S., Sabariego, C., & Stucki, G. (2023). The Learning Rehabilitation System: Strengthening an intersectoral strategy to improve functioning of an ageing population. Health Policy.
- Bickenbach, J., Rubinelli, S., Baffone, C., & Stucki, G. (2023). The human functioning revolution: implications for health system and sciences. Frontiers in Rehabilitation Sciences. https://doi.org/10.3389/fsci.2023.1118512
- Diaz, M., Sabariego, C., & Bickenbach, J. (2023). Voice, Disability and ‘End of Life’ Research: Strategies for including people with intellectual disabilities in qualitative research related to death and dying. Journal of Policy and Practice in Intellectual Disabilities.
- Frontera, W. R., Stucki, G., Engkasan, J. P., Francisco, G. E., Gutenbrunner, C., Hasnan, N., … Bickenbach, J. (2022). Advancing Academic Capacity in Physical and Rehabilitation Medicine to Strengthen Rehabilitation in Health Systems Worldwide: A Joint Effort by the European Academy of Rehabilitation Medicine, the Association of Academic Physiatrists, and the Interna. J Rehabil Med. https://doi.org/10.2340/jrm.v54.3510
- Frontera, W. R., Stucki, G., Engkasan, J. P., Francisco, G. E., Gutenbrunner, C., Hasnan, N., … Bickenbach, J. (2022). Advancing Academic Capacity in Physical and Rehabilitation Medicine to Strengthen Rehabilitation in Health Systems Worldwide: A Joint Effort by the European Academy of Rehabilitation Medicine, the Association of Academic Physiatrists, and the International Society of Physical and Rehabilitation Medicine. Am J Phys Med Rehabil, 9. https://doi.org/10.1097/phm.0000000000002067
- Frontera, W., Stucki, G., Engkasan, J., Francisco, G., Gutenbrunner, C., Hasnan, N., … Bickenbach, J. (2022). Advancing academic capacity in physical and rehabilitation medicine to strengthen rehabilitation in health systems worldwide: A joint effort by the european academy of rehabilitation medicine, the association of academic physiatrists, and the international society of physical and rehabilitation medicine. The Journal of the International Society of Physical and Rehabilitation Medicine, 3. https://doi.org/10.4103/ijprm.JISPRM-000168
- Spiess, A. A. F., Skempes, D., Bickenbach, J., & Stucki, G. (2022). Exploration of current challenges in rehabilitation from the perspective of healthcare professionals: Switzerland as a case in point. Health Policy, 3. https://doi.org/10.1016/j.healthpol.2021.09.010
- Sabariego, C., Fellinghauer, C., Lee, L., Kamenov, K., Posarac, A., Bickenbach, J., … Cieza, A. (2022). Generating comprehensive functioning and disability data worldwide: development process, data analyses strategy and reliability of the WHO and World Bank Model Disability Survey. Arch Public Health. https://doi.org/10.1186/s13690-021-00769-z
- Sabariego, C., Bickenbach, J., & Stucki, G. (2022). Supporting evidence-informed policy making in rehabilitation: A logic framework for continuous improvement of rehabilitation programs. Health Policy, 3. https://doi.org/10.1016/j.healthpol.2021.11.007
- Skempes, D., Kiekens, C., Malmivaara, A., Michail, X., Bickenbach, J., & Stucki, G. (2022). Supporting government policies to embed and expand rehabilitation in health systems in Europe: A framework for action. Health Policy, 3. https://doi.org/10.1016/j.healthpol.2021.06.014
- Bickenbach, J., Sabariego, C., & Stucki, G. (2021). Beneficiaries of Rehabilitation. Arch Phys Med Rehabil.
- Spiess, A. A. F., Skempes, D., Bickenbach, J., & Stucki, G. (2021). Exploration of current challenges in rehabilitation from the perspective of healthcare professionals: Switzerland as a case in point. Health Policy. https://doi.org/https://doi.org/10.1016/j.healthpol.2021.09.010
- Boes, S., Sabariego, C., Bickenbach, J., & Stucki, G. (2021). How to capture the individual and societal impacts of syndemics: the lived experience of COVID-19. BMJ Global Health.
- Hodel, J., Ehrmann, C., Scheel-Sailer, A., Stucki, G., Bickenbach, J., & Prodinger, B. (2021). Identification of Classes of Functioning Trajectories and Their Predictors in Individuals With Spinal Cord Injury Attending Initial Rehabilitation in Switzerland. Arch Rehabil Res Clin Transl.
- Sabariego, C., Fellinghauer, C., Lee, L., Posarac, A., Bickenbach, J., Kostanjsek, N., … Cieza, A. (2021). Measuring functioning and disability using household surveys: metric properties of the brief version of the WHO and World Bank model disability survey. Arch Public Health.
- Sabariego, C., Bickenbach, J., & Stucki, G. (2021). Supporting Evidence-Informed Policy Making in Rehabilitation: A Logic Framework for Continuous Improvement of Rehabilitation Programs. Health Policy. Health Policy.
- Skempes, D., Kiekens, C., Malmivaara, A., Michail, X., Bickenbach, J., & Stucki, G. (2021). Supporting government policies to embed and expand rehabilitation in health systems in Europe: A framework for action. Health Policy.
- Stucki, G., & Bickenbach, J. (2021). SwiSCI 360° Perspective – Results from the Swiss SCI Survey 2017. Spinal Cord.
- Bickenbach, J., Sabariego, C., & Stucki, G. (2020). Beneficiaries of Rehabilitation. Arch Phys Med Rehabil. https://doi.org/10.1016/j.apmr.2020.09.392
- Stam, H. J., Stucki, G., & Bickenbach, J. (2020). Covid-19 and Post Intensive Care Syndrome: A Call for Action. J Rehabil Med, 4. https://doi.org/10.2340/16501977-2677
- Hodel, J., Ehrmann, C., Stucki, G., Bickenbach, J. E., & Prodinger, B. (2020). Examining the complexity of functioning in persons with spinal cord injury attending first rehabilitation in Switzerland using structural equation modelling. Spinal Cord, 5, 570 ff. https://doi.org/10.1038/s41393-020-0428-4
- Pacheco Barzallo, D., Gross-Hemmi, M., Bickenbach, J., Juocevicius, A., Popa, D., Karunia Wahyuni, L., & Strøm, V. (2020). Quality of life and the health system: A 22-country comparison of the situation of people with spinal cord injury. Arch Phys Med Rehabilitation. https://doi.org/10.1016/j.apmr.2020.04.030
- Stucki, G., Bickenbach, J., Kiekens, C., Negrini, S., & Stam, H. J. (2020). Reflections of the European Academy of Rehabilitation Medicine on the first global estimates of the need for rehabilitation and the implications for physical and rehabilitation medicine. J Rehabil Med, 12. https://doi.org/10.2340/16501977-2784
- Bickenbach, J., Batistella, L., Gutenbrunner, C., Middleton, J., Post, M. W., & Stucki, G. (2020). The International Spinal Cord Injury Survey: The Way Forward. Arch Phys Med Rehabil, 12, 2227 ff. https://doi.org/10.1016/j.apmr.2020.06.011
- Stucki, G., Rubinelli, S., & Bickenbach, J. (2020). We need an operationalisation, not a definition of health. Disabil Rehabil, 3, 442 ff. https://doi.org/10.1080/09638288.2018.1503730
- Hopfe, M., Stucki, G., Bickenbach, J., & Prodinger, B. (2018). Accounting for What Matters to Patients in the G-DRG System: A Stakeholder’s Perspective on Integrating Functioning Information. Health Serv Insights, 11. https://doi.org/10.1177/1178632918796776
- Ehrmann, C., Prodinger, B., Gmunder, H. P., Hug, K., Bickenbach, J., & Stucki, G. (2018). Describing Functioning in People Living With Spinal Cord Injury in Switzerland: A Graphical Modeling Approach. Arch Phys Med Rehabil, 1965 ff. https://doi.org/10.1016/j.apmr.2018.04.015
- Stucki, G., & Bickenbach, J. (2018). Internationale Klassifikation der Funktionsfähigkeit, Behinderung und Gesundheit (ICF). SAGW Bulletin. 2018;4:39-40. SAGW Bulletin, 4, 39–40.
- Hopfe, M., Prodinger, B., Bickenbach, J., & Stucki, G. (2018). Optimizing health system response to patient’s needs: an argument for the importance of functioning information. Disabil Rehabil, 2325 ff. https://doi.org/10.1080/09638288.2017.1334234
- Stucki, G., Bickenbach, J., & Frontera, W. (2018). Rehabilitation - key for healthy ageing and longevity. Am J Phys Med Rehabil. https://doi.org/10.1097/phm.0000000000001111
- Stucki, G., Bickenbach, J., Gutenbrunner, C., & Melvin, J. (2018). Rehabilitation: The health strategy of the 21st century. J Rehabil Med, 309 ff. https://doi.org/10.2340/16501977-2200
- Gutenbrunner, C., Bickenbach, J., Borg, K., Nugraha, B., Melvin, J., & Stucki, G. (2018). Scaling up rehabilitation - Towards an international policy agenda. J Rehabil Med, 307 ff. https://doi.org/10.2340/16501977-2317
- Gimigliano, F., Selb, M., Mukaino, M., Baffone, C., Bickenbach, J., Engkasan, P. J., … Lains, J. (2018). Strengthening rehabilitation in health systems worldwide by implementing information on functioning in rehabilitation practice, quality management and policy. J Int Soc Phys Rehabil Med.
- Caracheo, A., Bickenbach, J., & Stucki, G. (2018). The Emergence of the Rehabilitative Strategy: The Driving Forces in the United States. Am J Phys Med Rehabil, 222 ff. https://doi.org/10.1097/phm.0000000000000864
- Skempes, D., Melvin, J., von Groote, P., Stucki, G., & Bickenbach, J. (2018). Using concept mapping to develop a human rights based indicator framework to assess country efforts to strengthen rehabilitation provision and policy: the Rehabilitation System Diagnosis and Dialogue framework (RESYST). Global Health, 96 ff. https://doi.org/10.1186/s12992-018-0410-5
- Stucki, G., Rubinelli, S., & Bickenbach, J. (2018). We need an operationalisation, not a definition of health. Disabil Rehabil, 1 ff. https://doi.org/10.1080/09638288.2018.1503730
- Fekete, C., Post, M. W., Bickenbach, J., Middleton, J., Prodinger, B., Selb, M., & Stucki, G. (2017). A Structured Approach to Capture the Lived Experience of Spinal Cord Injury: Data Model and Questionnaire of the International Spinal Cord Injury Community Survey. Am J Phys Med Rehabil.
- Bickenbach, J., Rubinelli, S., & Stucki, G. (2017). Being a person with disabilities or experiencing disability: Two perspectives on the social response to disability. J Rehabil Med, 543 ff.
- Stucki, G., Prodinger, B., & Bickenbach, J. (2017). Four steps to follow when documenting functioning with the International Classification of Functioning, Disability and Health. Eur J Phys Rehabil Med, 144 ff.
- Stucki, G., & Bickenbach, J. (2017). Functioning information in the learning health system. Eur J Phys Rehabil Med, 139 ff.
- Stucki, G., & Bickenbach, J. (2017). Functioning: the third health indicator in the health system and the key indicator for rehabilitation. Eur J Phys Rehabil Med, 134 ff.
- Ehrmann, C., Bickenbach, J., & Stucki, G. (2017). Graphical modeling: a tool for describing and understanding the functioning of people living with a health condition. Eur J Phys Rehabil Med.
- Stucki, G., Bickenbach, J., & Negrini, S. (2017). Methodological notes on applying the International Classification of Functioning, Disability and Health in rehabilitation. Eur J Phys Rehabil Med, 132 ff. https://doi.org/10.23736/S1973-9087.16.04571-8
- Hopfe, M., Prodinger, B., Bickenbach, J., & Stucki, G. (2017). Optimizing health system response to patient’s needs: an argument for the importance of functioning information. Disabil Rehabil, 1 ff.
- Stucki, G., Bickenbach, J., Gutenbrunner, C., & Melvin, J. (2017). Rehabilitation: The health strategy of the 21st century. J Rehabil Med.
- Stucki, G., Bickenbach, J., & Melvin, J. (2017). Strengthening Rehabilitation in Health Systems Worldwide by Integrating Information on Functioning in National Health Information Systems. Am J Phys Med Rehabil, 677 ff.
- Stucki, G., & Bickenbach, J. (2017). The International Spinal Cord Injury Survey and the Learning Health System for Spinal Cord Injury. American journal of physical medicine and rehabilitation / Association of academic physiatrists.
- Caracheo, A., Bickenbach, J., & Stucki, G. (2017). The emergence of the rehabilitative strategy: The driving forces in the United States of America. American journal of physical medicine and rehabilitation / Association of academic physiatrists.
- Describing the lived experience of Swiss persons with spinal cord injury. (2016). J Rehabil Med, 113 ff. https://doi.org/10.2340/16501977-2056
- Methodological notes on applying the International Classification of functioning, disability and health (ICF) in rehabilitation. (2016). Eur J Phys Rehab Med.
- Strengthening rehabilitation in health systems worldwide by integrating information on functioning in national health information systems. (2016). Am J Phys Med Rehabil.
- Stucki, G., Rubinelli, S., Reinhardt, J., & Bickenbach, J. (2016). Towards a common understanding of the Health Sciences. Das Gensundheitswesen, 1 ff.
- Stucki, G., Rubinelli, S., Reinhardt, J. D., & Bickenbach, J. (2016). Überlegungen zu einem allgemeinen Konzept der Gesundheitswissenschaften. Das Gesundheitswesen, 1 ff.
- Skempes, D., Stucki, G., & Bickenbach, J. (2015). Health-related rehabilitation and human rights: analyzing states’ obligations under the United Nations Convention on the Rights of Persons with Disabilities. Arch Phys Med Rehabil, 163 ff. https://doi.org/10.1016/j.apmr.2014.07.410
- Gutenbrunner, C., Bickenbach, J., Kiekens, C., Meyer, T., Skempes, D., Nugraha, B., … Stucki, G. (2015). ISPRM discussion paper: Proposing dimensions for an International Classification System for Service Organization in Health-related Rehabilitation. J Rehabil Med, 809 ff. https://doi.org/10.2340/16501977-2002
- Stucki, G., Reinhardt, J. D., & Bickenbach, J. (2015). Re: ‘Theoretical Foundations for the Measurement of Environmental Factors and Their Impact on Participation Among People With Disabilities’. Arch Phys Med Rehabil, 1739 ff. https://doi.org/10.1016/j.apmr.2015.05.022
- Bostan, C., Oberhauser, C., Stucki, G., Bickenbach, J., & Cieza, A. (2015). Which environmental factors are associated with lived health when controlling for biological health? - a multilevel analysis. BMC Public Health, 508 ff. https://doi.org/10.1186/s12889-015-1834-y
- Bostan, C., Oberhauser, C., Stucki, G., Bickenbach, J., & Cieza, A. (2014). Biological health or lived health: which predicts self-reported general health better? BMC Public Health, 189 ff. https://doi.org/10.1186/1471-2458-14-189
- Cieza, A., Oberhauser, C., Bickenbach, J., Chatterji, S., & Stucki, G. (2014). Towards a minimal generic set of domains of functioning and health. BMC Public Health, 218 ff. https://doi.org/10.1186/1471-2458-14-218
- Bostan, C., Oberhauser, C., Stucki, G., Bickenbach, J., & Cieza, A. (2014). Which environmental factors are associated with performance when controlling for capacity? J Rehabil Med, 806 ff. https://doi.org/10.2340/16501977-1839
- Rubinelli, S., & Bickenbach, J. (2013). Introduction: Dynamics of well-being. Topoi: An international Review of Philosophy, 32 (2), 135–136.
- Fellinghauer, B., Reinhardt, J. D., Stucki, G., & Bickenbach, J. (2012). Explaining the disability paradox: a cross-sectional analysis of the Swiss general population. BMC Public Health, 655 ff. https://doi.org/10.1186/1471-2458-12-655
- Fellinghauer, B., Reinhardt, J. D., Stucki, G., & Bickenbach, J. (2012). Explaining the disability paradox: a cross-sectional analysis of the Swiss general population. BMC Public Health, 655 ff. https://doi.org/10.1186/1471-2458-12-655
- Geyh, S., Muller, R., Peter, C., Bickenbach, J. E., Post, M. W., Stucki, G., & Cieza, A. (2011). Capturing the psychologic-personal perspective in spinal cord injury. Am J Phys Med Rehabil. https://doi.org/10.1097/PHM.0b013e318230fb68 [doi] 00002060-201111000-00008 [pii]
- Stucki, G., Bickenbach, J. E., & Post, M. W. (2011). Developing epidemiologic studies of people’s lived experience: the Swiss Spinal Cord Injury Cohort Study as a case in point. Am J Phys Med Rehabil. https://doi.org/10.1097/PHM.0b013e318230fe6a
- Geyh, S., Peter, C., Muller, R., Bickenbach, J. E., Kostanjsek, N., Ustun, B. T., … Cieza, A. (2011). The Personal Factors of the International Classification of Functioning, Disability and Health in the literature - a systematic review and content analysis. Disabil Rehabil, 1089 ff. https://doi.org/10.3109/09638288.2010.523104
- Reinhardt, J. D., von Groote, P. M., DeLisa, J. A., Melvin, J. L., Bickenbach, J. E., Li, L. S., & Stucki, G. (2009). Chapter 3: International non-governmental organizations in the emerging world society: the example of ISPRM. J Rehabil Med, 810 ff. https://doi.org/10.2340/16501977-0430
- Reinhardt, J. D., von Groote, P. M., DeLisa, J. A., Melvin, J. L., Bickenbach, J. E., & Stucki, G. (2009). Chapter 4: A policy process and tools for international non-governmental organizations in the health sector using ISPRM as a case in point. J Rehabil Med, 823 ff. https://doi.org/10.2340/16501977-0435
- von Groote, P. M., Reinhardt, J. D., Gutenbrunner, C., DeLisa, J. A., Melvin, J. L., Bickenbach, J. E., & Stucki, G. (2009). Chapter 5: Organizational structures suited to ISPRM’s evolving role as an international non-governmental organization in official relation with the world health organization. J Rehabil Med, 833 ff. https://doi.org/10.2340/16501977-0414
- Bickenbach, J., DeLisa, J., vin Groote, P., Gutenbrunner, C., Haig, A., Imamura, M., … Stucki, G. (2009). ISPRM Discussion papers. Developing the International Society of Physical and Rehabilitation Medicine (ISPRM) (Complete issue). J Rehabil Med, 758 ff. https://doi.org/10.2340/16501977-0429
- Stucki, G., Reinhardt, J. D., Gutenbrunner, C., & Bickenbach, J. E. (2009). Re: the dream of a medical specialty named physical and rehabilitation medicine: a commentary on the European White Book of Physical and Rehabilitation Medicine. Am J Phys Med Rehabil, 1039 ff. https://doi.org/10.1097/PHM.0b013e3181b3340e
- Bickenbach, J., Stucki, G., & Buschmann-Steinhage, R. (2022). Zielgruppen der Rehabilitation. In Meyer, Thorsten, Bengel, Jürgen & Wirtz, Markus Antonius (Eds.), Lehrbuch der Rehabilitationswissenschaften. Götitngen: Hogrefe.
- Cantista, P., Ceravolog, M., Christodoulou, N., Delarque, A., Gutenbrunner, C., Kiekens, C., … Sampaio, F. (2018). Definitions and concepts of PRM (Chapter 1): White book on Physical and Rehabilitation Medicine in Europe. In European Physical and Rehabilitation Medicine Bodies Alliance (Ed.), White Book on Physical and Rehabilitation Medicine in Europe (Vol. 54, pp. 156–165). Brussels: Eur J Phys Rehabil Med.
- Stucki, G., Bickenbach, J., Selb, M., & Melvin, J. (2018). The International Classification of Functioning, Disability and Health. In Frontera, Walter (Ed.), DeLisa’s Physical Medicine and Rehabilitation. Principles and Practice (Vol. 6). Philadelphia: Wolters Kluwer.
- Bickenbach, J., Cieza, A., Rauch, A., & Stucki, G. (2012). ICF Core Sets: Manual for Clinical Practice For the ICF Research Branch, in cooperation with the WHO Collaborating Centre for the Family of International Classifications in Germany (DIMDI). In Stucki G (Eds) (Ed.), ICF Core Sets. Göttingen, Bern: Hogrefe.